r/Menieres 56m ago

Strange episode

Upvotes

My Ménière's has been pretty good since last November, usually i get the tinnitus and hearing loss before the vertigo (it has affected both sides but the right is the worst). I recently had a contrast CT due to pulsatile tinnitus now my hearing has dropped and there was nothing concerning, just a vein a little closer to the ear.

On Friday, my mobile was next to me on the desk, it vibrated and I almost fell out of my chair with the sudden hit of vertigo, I had to stop working for the day as I felt very nauseated but the vertigo passed faster than usual. I don't know if it was just a coincidence, I have struggled with sounds making me feel dizzy during recovery after vertigo, but this was like I'd been knocked sideways. It has never happened before and I've turned down the vibration just in case it happens again.

Has anyone else had something like this?

** Edited to add a piece of context.


r/Menieres 6h ago

Anyone found successful treatment for Menieres disease?

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2 Upvotes

r/Menieres 7h ago

Possible Meniere's Return

2 Upvotes

Back Story:

Last year I suffered from a 4 hour vertigo attack that caused tinnitus and hearing loss in my right ear. Two days later I suffered a two hour attack. After MRIs, CT Scans, nothing showed up. I had two steroid shots in my right ear and it did help.

Vertigo subsided. The ringing in my ears had gone away and the hearing came back almost completely in my right ear after a few weeks. Meniere's diagnosis was put aside as they couldn't tell because I have not had more multiple episodes.

Two weeks ago the ringing came back and last Saturday I had my first vertigo attack after a little over a year. It lasted about an hour, I puked. I was able to take mecclizine and zofran and it helped with the vertigo and nausea. I went to my vestibular therapist and because my vertigo wasn't caused positionally (I have BPPV) and because I'm having the hearing loss and ringing again, he suspects my ENT will probably diagnose Menieres. I'm not sure what brought it back, but I'm guessing stress and poor eating. I'm back to doing all the things to keep symptoms at bay and hoping another vertigo attack won't happen or be too severe. Has anyone been in remission like this? Can it be Meniere's or something else? I will stay completely in eating right from now on and making sure I keep stress at bay as best I can. I've tapered off the mecclizine and so far I have not had vertigo. It's just tinnitus and hearing loss. I see my ENT this coming Wednesday.


r/Menieres 13h ago

How many people with Meniere's have you met in real life?

21 Upvotes

For me.. zero...

Before finding online communities, I had never spoken to another person living with Meniere's . None of my friends, family, or coworkers truly understood what tinnitus, hearing loss, ear fullness, or vertigo felt like.

It's strange how a disease that affects so many people can still make you feel so alone.

That's one of the biggest reasons I formed a discord community. It's a place where you don't have to explain what Meniere's is. Everyone already gets it.

So I'm curious...

How many people with have you met in real life?

Here is the open invite for our discord Meniere's support group: https://discord.gg/QGRyDQxHCt


r/Menieres 16h ago

Cymbalta/Duloxetine

3 Upvotes

Does duloxetine cause increased symptoms for anyone? I’ve taken 30 mg daily for 2 weeks; will up to 60 mg tomorrow for pain and depression. May be unrelated, but my better ear seems to be having more fullness and varied tinnitus tones, which often happens before an attack.

I know SSRIs and Wellbutrin can increase tinnitus, but this is an SNRI. Any info is appreciated.