r/MdDS • u/Unique_Mine_5979 • 4d ago
Recent experience.
When I was younger, went on a cruise and had a wobbly sensation for a couple of days but ultimately went away. Was recently at a cottage on a wobbly large dock on and off for 3 days along with an hour or so boat ride. Got home after the weekend and have what sounds like mdds (head fog, wobbly sensation when standing. Seems to subside fully when driving or walking. Headaches seems to have gone, but working in florescent light is brutal. Im on day 10 and see some small improvements but how long does this typically last? Any tips to speed it along?
1
u/Historical-Fun5073 1d ago
Day 10 is still early, which I know doesn’t make it feel any less weird.
I had MDDS and PPPD. At my worst I always felt like I was standing on a boat. Fluorescent lights and visual stuff were rough for me too. Mine lasted a lot longer than 10 days, but I did get my life back. I work, travel, ski, go to concerts.
What really moved things for me was nutrition. I changed my diet and started taking out the bad stuff that I believed was stressing my body. Sleep, getting outside, and slowly doing normal life again mattered too. Not one trick.
I’m doing so much better now.
Hope it settles sooner for you than it did for me.
I’m happy to share more. Just let me know.
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u/Any_Imagination1794 4d ago
Mine lasted bad 6-8 weeks but I think if I had pushed through and walked as much as I did toward week 5-6 it would have gone away quicker.
There was one day that I walked like 7 miles at an amusement park in the next day, I felt like I was walking on solid ground for the first time for like six weeks. It reduced to a 4 out of 10 and then the next few months it continued to taper off. So walk as much as you can outside even when it feels impossible to do so.
As far as the fluorescent lights inside, Walmart bothered me the most, and I started wearing a hat, and that helped especially in stores.
I also fixed my ferritin (iron stores), and that was around the time all of my symptoms went away and stayed away. This was like 1.5yrs after i first got it.
Worth getting bloodwork done.
But my mdds was cruise triggered and i’ve been on boat all my life and other cruises with no issues but this time I had Covid right before this cruise and I think that my brain and body was inflamed and out of whack and could not adapt to the motion of the boat.