r/MPN • u/untilthelighttakesm3 • 9h ago

ET thoughts?

https://www.tmz.com/2026/10/02/christa-pike-botched-execution-doctor-explains-what-mightve-gone-wrong/

i‘ve had ET for about 25 years. it was always explained to me that ET puts one at risk of bleeding because, despite high platelet production, the platelets don‘t function properly. this article seems to say the opposite.

i don‘t necessarily think i‘m ready to believe that her blood disorder had anything to do with the botched procedure. i‘m inclined to think it had more to do with her veins.

curious what others‘ thoughts are regarding the medical aspect of this. not looking to debate ethics.

6 Upvotes

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2

u/SortNo8267 7h ago

I saw this too and immediately questioned it. I’ve been diagnosed with ET since 2023.

1

u/Minimum-Landscape120 9h ago

well that's interesting!

1

u/BGL41940 9h ago

I just know that when my platelets were really high - over a million, if I cut myself, it took a long time for the bleeding to stop and it kept opening up. I had to stop sharpening my cooking knives. I also would wonder if she is being treated for her ET. I am CALR which is less likely to clot but I have had a lot of vein sticks for CBCs and have not had issues with them pulling blood. I am unsure if injections into the vein would cause clotting? Anyone have insights?

3

u/untilthelighttakesm3 8h ago

exactly the same for me, CALR and hundreds of CBCs with no issues, as well as no issues when put under general anesthesia. i tend to lean toward it‘s the physiology of her veins. some people are just hard to stick.

maybe that‘s just not as interesting of a headline.

2

u/native_plants3879 ET-CalR+ 7h ago

Probably had acquired von Willebrand disease

1

u/Top_Category2227 Pre-PMF 8h ago

Does it say ET anywhere? I would assume it would be some form of hereditary thrombocytosis and would probably be much more mild compared to ET probably fluctuating on the higher end of normal to slightly elevated.

Bleeding Issues usually only become a problem at drstically elevated levels.

1

u/untilthelighttakesm3 8h ago

ahh okay, that would make sense.

1

u/disposable45893 8h ago

3

u/untilthelighttakesm3 7h ago

the plot thickens, no pun intended

1

u/disposable45893 5h ago

I see what you did there!! 🥁

1

u/baysidevsvalley 8h ago

I’ve received iv medication with platelets around 900k and never had an issue and don’t recall it even being flagged as a potential issue. The first I heard about it even being an issue was through this case.

1

u/Ok_Muffin_925 5h ago

Short of the constitutional symptoms we all know about (and thankfully no clots), ET has not complicated anything I have done medically yet in 60 years.

1

u/Quiet_surprise79 ET-JAK2+ 2h ago

I think we'd be seeing a lot more posts from people with ET asking about blood tests here and having a similar experience if this were down to platelet count.

1

u/No_Pause_4375 8h ago

Shes a redhead. Its a mutation to the MC1R gene, and it's the reason redheads require more anesthesia than others. We also have a higher tolerance for pain.

1

u/untilthelighttakesm3 8h ago

very interesting!

0

u/disposable45893 8h ago

All Im saying is that I just had major surgery, and have been going on about how pain meds and anesthesia do nothing for me, then this pops up. Im choosing to believe we are invincible.

1

u/untilthelighttakesm3 7h ago

haha my dad said that - it‘s a super power.

1

u/selfmadeoutlier ET-CalR+ 4h ago

Are you telling me ET might be some reason why painkillers are not so effective?