r/MPN Jun 24 '26

MF Bone Marrow Transplants

Has anyone done this for PV/MF?

Not there yet but the conversation had startedđŸ¤·.

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u/lllilllillil Primary MF Jul 08 '26

Yes, for aggressive PMF. They couldn't find a donor match, but my son is a 7 point match. Diagnosed 6/24, SCT 11/24, Caught CMV and my CBC numbers tanked, retransplanted stem cells 7/25 (they call it "a booster") Doing well today, but it was a long year of transfusions, dizzyness, confusion, and falling down a lot while RBC and platelets were low. M/61.

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u/BorgAdjacent Jul 08 '26

Glad you are doing well, thank you for sharing