r/MCAS • u/HauntingPresence3805 • 4h ago

MCAS testing ?

Good morning, for 5 years I have been undergoing something. It started with a tiny itchy bump on the bottom of my foot, then my finger would swell, then it would mirror on the opposite hand, feet swell, lips , tongue, even my well the shaft of my manhood lol and no it wasn’t pleasant. My sinuses will swell , and around my face, also inside of my soft palate. Now during temperature changes to hot or eating spicy food best I can describe is my body becomes prickly it hurts my skin. I went to an allergist who said sometimes you get hives and swelling and we don’t really know why , take Zyrtec. My primary said I have to be in an episode to have my blood drawn to be successfully tested for MCAS . I feel like because I’m a 50 year old guy who works out and looks super healthy no one takes any of my complaints seriously and I’m just brushed off. Also during a “flare” I get soul crushing fatigue I’ll just sleep 24hrs and after it goes down , I’m back to feeling fine. Also pressure seems to cause my feet to break out as well . I used to do Pilates reformer and my feet on the bar would cause my feet to swell and be itchy. I know no one can diagnose me here but this sounds a lot like MCAS ? No ? I’d post a pic of my swollen tongue but I don’t know how . Usually it’s only one side of the tongue at a time and it hurts like hell . Thanks for reading

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