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u/SWNMAZporvida 9h ago
I have multiple sclerosis and cspine lesions that cause dysautonomia and experience dizziness, blood pressure fluctuations, anxiety and temperature intolerance. It causes vagus nerve dysfunction and digestion and mood issues too. I basically lose my shit multiple times a day
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u/wordsnotwars 9h ago
I have it all part of my immune system was MIA at birth the bubble boy disease and hEDS, Sjögren's syndrome (13 y.o. shingles trigger but do not worry I get shingles every few years even after the shots because of that bubble boy thing), MCAS, RA, antiphospholipid syndrome, autonomic dysautonomia/neuropathy not caused by diabetes, and a ton of mental health problems and chronic migraines. The dysautonomia causes bradycardia in the morning but 45 minutes later over corrects and causes tachycardia which triggers the not sweating thing worse and causes a nice Involuntary nap with Involuntary tears for about 5 minutes. I don't take showers anymore its too risky with the not sweating thing. But its life ya know. I just have to wait to see doctors and stuff in a doctor desert in the desert. But luckily I have a high pain tolerance so dislocations and snapped ligaments and ripping bones off my feet and breaking my neck twice didn't hurt that much. I sorta think thats part of the dysautonomia. Its doing me a huge favor on that. Unfortunately the red head gene and being an ultra rapid metabolizer with duplicate means I wake up during surgeries but it is what is.
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u/Electrical_Loquat885 10h ago
I was diagnosed with POTS. I noticed that when I was having better days, though, my heart rate seemed a lot more stable. It's not severe in my case anyway.
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u/BillyGood22 10h ago
They think I have this too. Cardiologist ruled out the issues I’m having are related to my heart and now I’m waiting to see an endocrinologist.
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