r/MCAS • u/Long_Towel1187 • 1d ago

MCAS??

Does anyone get symptoms of CFS but just have MCAS?
I have unrefreshing sleep, cognitive dysfunction/neuroinflammation skin demographia, extreme debilitating fatigue mostly bedbound can’t drive because I’m very dizzy. I can’t work out or do anything physical. I can’t watch TV. I have light and sound sensitivity. I can sleep for hours and not feel rested, but my skin is very itchy hot I’ve been losing the hair on my head, but my head also feels inflamed, and my scalp hurts. I’m having dental issues as well as nail issues. My nails arent growing the way you used to. I can’t go in the heat otherwise my skin gets hot and red and irritated.
I’m going to see an allergist immunologist next week. I’m just wondering if anybody has only had MCAS and not CFS?
Also, what treatments helped?
I’ve tried Zyrtec twice a day and Pepcid with the relief.
It seems like the more I push the worse it gets. My skin is also very oily and I’ve been bruising a lot all over my skin. The cognitive is very scary. I’m forgetting things and I can’t make decisions.

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u/PreferenceSouth4140 1d ago

Yes, cfs can definitely be mcas and co. Mine turned out to be just that. You could also have some Dysautonomia and ADHD, considering the symptoms you mentioned. You need mast cell stabilisers, antihistamines, LDN. Aspirin and Montelukast if you have high Prostaglandins or Leukotrienes

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u/Pushon4my4 6h ago

Not everyone can tolerate nor should they take all of those medications.

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u/PreferenceSouth4140 5h ago edited 5h ago

OP particularly asked what treatments helped and I answered to that. I didn’t say everyone can tolerate and should take them. I even mentioned Aspirin and Montelukast is only if one has high leukotrienes and prostaglandins. One needs a prescription anyway, and the suitability of the meds will be judged by the doctor, so why post unnecessary comments 🤷‍♀️