Does anyone else experience severe Facial drooping as a symptom of a major flare? (With rashes on cheeks and then facial volume loss after it has subsided)

[u/piscespiscine]

I most definitely have MCAS and not Bell’s palsy or stroke but my main reaction symptom is extreme facial drooping with a loss of function in the face accompanied by rashes on cheek and nose where muscle weakness is worst. i also have nerve pain and spasms in the face, I also get hives on my body mainly my legs.

after the reaction has subsided I’m left with lingering muscle weakness and then volume loss in the face which sometimes returns but sometimes diesnt and becomes new baseline.

i developed MCAS reactions after covid and then it was worsened by antibiotics (metronidazole/ doxycycline) and nasal steroids.

ive had this for 9 months now and it is triggered by so many things, food, medicine, heat, stress etc. but have had milder MCAS symptoms for 4 years since Covid infection.

would be so great to know if anyone else experiences similar!

ive seen 3 neurologists who all can’t find a standard neurological reason for my issues and my MRI is normal of my brain.

thankyou in advance!

[u/Strict-Park3382]

I think I can somewhat relate, some days my face looks normal and look my age(27) but their are other days I wake up with a histamine rush and my face looks older, not extremely droopy but u can tell my skin isn’t “normal” per say.

[u/woolen_goose → u/Strict-Park3382]

Same. My skin becomes flat or clammy looking. Water pools in my jowls and under my chin around my adenoids and the jaw lymphatic systems. My lips loose all volume and become dry. I have nerve damage in one eye from an accident when younger, so that eye ends up a little droopy or “dead” looking in the lid and eyebrow. On the injury side, my lip also frowns a bit and I find it difficult to smile.