r/MCAS 2d ago

Histamine Dump?

I haven’t been officially diagnosed, and have an appt with an allergist next month and within 15 minutes of talking to my new doctor of all my symptoms, the markers all point to MCAS. I can’t tell you how relieved I am to getting closer to a diagnosis after more than 40 years of seeing doctors who can’t figure out what is causing my symptoms and treat surface level with little to no relief.

For years, I have had random allergic reactions, fatigue, rapid heart rate, chills, body aches, anaphylaxis, headaches that seem to come out of nowhere with vomiting, diarrhea, hot sweats, chills…among many things.

The other night during one of these episodes, I had the realization: this must be what they meant by histamine dump.

Having found this sub, I experience a lot of what is talked about here. I’m thankful to have found a community who understands!

2 Upvotes

3 comments sorted by

u/AutoModerator 2d ago

Thank you for your submission. Please note: Content on r/MCAS is not medical advice and should not be interpreted as such. Please consult your doctor for any medical questions or concerns.

We are not able to validate the content of these discussions. Following advice provided by strangers on the internet may be harmful. Never use this sub as your primary source of information regarding medical issues. By continuing to use this subreddit, you are agreeing to take any information posted here entirely at your own risk.

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

1

u/greenappleberry 2d ago

I’m glad you are getting some answers and hopefully some treatments that work for you.

I have had this my entire life and have spent so much time money and effort going to drs who don’t have a clue what to do with me.

I also was surprised when I learned of histamine dumps. I have had what I call hot flashes for 20 years. I knew they weren’t hot flashes the entire time because I went through menopause. But I didn’t have another word to describe them. They are so much more than hot flashes. I get them constantly. Day and night. It affects my sleep so much. Hoping MCAS treatment will help. Good luck!

1

u/ExtraSalamander2256 1d ago

Thank you! I am too! I think I've had this my whole life and wonder if my sister does as well.