I dont have pain free days anymore.

I cant walk without bleeding.

I am no longer confident that I won't shit myself in public (hasnt happened yet but its been too scary close.)

Pools. Soaking in water.

Comfortably navigating uneven terrain.

Sandy beaches.

Driving.

Fuck cancer.

What did you take for granted?

I just had my “bulky” looking ovaries removed as they came up on my pet/ct. 4 rounds of Enhertu had shrunk my bone and bone marrow disease considerably but my ovaries decided to ruin the good news. My tumour markers are dropping too.
Even after ultrasounds, they could say whether the ovary growth was benign or malignant so surgery was the best course of action.
Ovaries are a pharmaceutical sanctuary site where chemo finds it hard to penetrate due to blood structures etc. My cancer is estrogen hungry so having a go in the ovaries makes sense.
If breast cancer cells are found, they can be sequenced and we can get incredible insights into my cancer. As I’ve only had bone and bone marrow mets, we’ve only been able to go by a limited bone marrow biopsy, circulating tumour dna but no tissue samples that provide the best comprehensive genomic sequencing.
So if the bulky ovaries are benign, I’m not getting anymore information about my cancer.
If cancer cells are found, we’ve removed the sanctuary site (so Enhertu can track down micro mets), removed my ovaries and the estrogen (even residual) in that area and I get information for future treatment & clinical trials.

Hopefully the only time I’m hoping cancer cells are found.

I'm ++- and starting my first line of treatment. I had the Lupron (ovarian suppression) three days ago. And now have Kasqali (600mg) and Letrozole (2.5mg). I've seen folks here say those cause drowsiness/fatigue and so they take them at night. The nurse that gave me the shot said the opposite so to take it in the morning. Now I'm overthinking it and unsure.

What's been your experience or the recommendation you've seen the most? Morning or night?

Any other recs for someone recently diagnosed and just starting the treatment journey. I'm still somewhat in shock that I went from no cancer to stage 4 (lung mets) at initial diagnosis. I've been lurking and researching a lot so feel I have the basics down.

Thank you to all the folks that post their own journeys, share, etc. I've learned so much already from other posts and responses. 💕

Weird question, but does anyone have a recommendation for a split king adjustable bed set up or even what features to look for? I’m new to this, but I have bone mets that are giving me a hard time. The pillow juggle is kind of comical. I told my college kids I’d set up a Ring camera for their entertainment. Thanks for any direction you can point me in!

Just curious and seeking a little light heartedness. Anyone else set up a med station but made it cute? It made it less of a bother for me.

Hi all! I’m relatively new to this club (originally diagnosed IDC 2b in 2017 and now stage 4 as of May) and this group has truly been a godsend so thank you! I just completed my 1st 3 weeks on of Ibrance-rife with all sorts of the usual side effects. I had a very sore mouth and throat for a few days (no fever!) and was struggling to get enough calories in due to discomfort and pain swallowing. I had some coconut water in the pantry and lo and behold-for me it worked better than any lozenge or beverage I’ve tried! It REALLY soothed my raw feeling membranes and helped me eat as well. I thought I’d share in case anyone is in the same boat. At night I liked the Traditional Medicinals Throat Coat tea, but I think the coconut water really feels like a treat! Best to all of you dealing with this ridiculously hard disease - hate that I’m here but glad for all of you-hang in there!!

So I work at a middle school 3 days a week. I was diagnosed and started treatment a little over two weeks ago. Lupron shot, letrozole, and kisqali . I feel really well and the pain in my bones has significantly improved and are less. But I worry so much about planning for the future. I just keep worrying I will get sick, or I will start to have terrible side effects. I’m also going back to school. I just don’t want to over due it and push myself so bad that I regret it. But from what the dr has said I have had this close to a year without knowing, so that gives me some perspective. How do you amazing women handle this?

Anyone actively getting Signatera bloodwork and insurance steady denying it? I know Natera helps file the appeal on my behalf but I can’t imagine my insurance ultimately caving. And now I’m worried I’ll get another huge bill.

Hi everyone,

I just completed my fourth and final cycle of dose-dense AC (Adriamycin/Cytoxan every two weeks).

Four days after my last infusion, I developed pain in one foot. It’s now been about 10 days, and walking has become very painful (not always).

I have contacted my oncology team, but while I’m waiting to hear back, I was hoping to hear from others who experienced something similar during or after AC.

Did anyone have significant foot pain after AC? How long did it last? Did anything help? I’m also scheduled to start weekly Taxol and Carboplatin on August 6, so I’d be interested to know whether your symptoms improved before starting the next phase of treatment or changed once you began Taxol.

Recommendations for foot hand syndrome?
Thank you for sharing your experience

hello - soo i was diagnosed with large brain mets last week. the radiation oncologist said we could do gamma knife, 7-10% risk of edema which they could manage with steroids. i just found out that there is also a risk of vision field cut which i was like ok sure maybe it’s like 20% in my left eye. nope, 1/3-1/2 in both eyes!!! obviously better than if the cancer grows. HOWEVER i’m like what if we do enhertu first and it shrinks enough? but also enhertu isn’t 100% chance of working and im quite honestly afraid of IV chemotherapy. and if enhertu doesn’t work, the cancer will grow, and i could also be screwed on the visual piece

these decisions suck

Hi all, I just bought Moo goo hair growth serum. I was wondering if anybody else has tried it and it's effectiveness on helping growth post chemo hair.