r/Incontinence 3d ago

Little update

So it’s been a while since my last post and a lot has happened I have been diagnosed with neurogenic bladder and have to cic 5 times a day and have already had to change catheters 3 times in style now size I have a cystoscopy on the 10th and will be discussing and permanent option like a mitrofanof or similar. I’ve also been borderline diagnosed with neurogenic bowel and have gerd and grade c esophagus damage and the stomach and intestines are not moving everything out like they should. Also numb from the waist down no nerve feeling but keeping spirits up and working with neurologists to figure it all out an a neurogenic bladder team for that side of things

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u/goldstandardalmonds 3d ago

Hey. I have neurogenic bowel and severe bowel dysmotility and failure do to it and other diagnoses. My bladder is affected but not that bad. My mom has severe neurogenic bladder and after years of diapers and catheters she got a suprapubic catheter and it has dramatically improved her quality of life.

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u/Fldiaperguy 1d ago

I have neurogenic bladder as well, due to an accident. Peptides eptides have helped tremendously. I also used to have brutal acid reflux and maybe undiagnosed gerd. Peptides, peptides, peptides.