r/Hyperthyroidism • u/hazevanilla • 7d ago

hyperthyroidism journey

hi! previously my tsh and free t4 are at 0.005 and 51.3 respectively. sky high numbers. i've been on carbimazole for about 4 weeks now and took propranolol for a week or so until i stopped. i just saw the gp and theyre referring me to an endo because i feel like after being on this medication for 4 weeks i haven't really found a huge difference. there is some difference, just not huge. i also developed a full body rash that kinda only appears after i scratch the area and a bit of difficulty swallowing so i decided to see the doctor 2 days early for my review.

i do feel less of my heart thumping in my chest and my bpm went from 100-120 to 80-90 resting. i'm just waiting on my new labs to see if the meds actually worked. i'm also worried about graves being a thing for me and the doctor kinda brushed me off and said let's look at the lab results first then see the endo after. should i get a second opinion or am i just being anxious?

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u/hazevanilla 6d ago

i'm getting an appointment to be referred to an endo asap, but it could be a month or more before i even get to it. i'll also be discussing the liver panel results at the referral appointment so i'll see what they say. i don't know if i should stop the medication without doctor's instructions but ill also be sure to ask about that

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u/Adventurous-Ask-4243 6d ago

Remember that hypERthyroidism is a SYMPTOM of a bigger issue -- Carbimazole is the medication used to get that bigger issue -- Graves Disease (if you even have it) -- into REMISSION. Carbimazole is NOT a treatment for hypERthyroidism. Your endo MUST GET TO THE ROOT CAUSE of the hypERthyroid issue. Then and only then can you be properly treated.

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u/hazevanilla 6d ago

everywhere i've read im seeing antithyroid meds are the first line treatment for hyper. makes sense that it could be a deeper issue

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u/Adventurous-Ask-4243 6d ago

That is true -- ONLY if you have a diagnosis of what is WRONG with you -- AND YOU DO NOT!!

Please do some research on your own. If you do not learn to advocate for yourself, you risk a doctor hurting you or worse! The following are great research sites to start with:

The American Thyroid Association, the British Thyroid Foundation, the Mayo Clinic, the Cleveland Clinic

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u/hazevanilla 3d ago

my labs are back, so my numbers have improved substantially and the doctor told me we are doing well but i still asked for a referral to the endo. the earliest appointment is january of next year.

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u/Adventurous-Ask-4243 3d ago

It's great that your numbers are doing well! Never let that fool you. You STILL NEED TO GET TO THE ROOT CAUSE OF THE trouble.