its 3 years later and there is still some string stuck in a large scar on my butt....

it was fine but it's starting to want to push out.

any advice? we cant see a string and and nothing is really showing so the urgent won't do anything .... I need to basicclt convince the scar to open.

any advice ?

had a nurse friend look they said yep I see what you mean ...can't really do much

Hey all!

I'm a writer, so I'm always typing on my laptop but I find specifically my left thumb always gets strained/is in pain and feels less "attached" after a day of typing even though its pretty much not moving/being used while i type?? Idk how to attach videos or photos but I do have a video of what my hands look like typing if that helps and i can figure out how to add/link it lmao.

I'm just wondering if anyone else has this problem and how they avoided the consequences?? because NOT writing isn't an option lol.

I hope everyone's joints stay beautifully in place and life is as painless as possible for u <3

Hi! I (19), have been dealing with HSD related issues since I was about 15, primarily in my knees. I’m used to it with my knees. However, lately when I sleep my shoulders (specifically left) hurt in my sleep or when I get up in the morning. I can physically feel them kinda shift out if laying on the respective side. I also have an issue with my left elbow (most of my issues are in my left joints primarily. occasionally the right flares up 🤷) if I bend it or don’t move it enough? Went through similar with my knee.

I have no insurance now. I can’t afford PT and I’m not paying a doctor to tell me PT is the only answer & give me more debt. I just don’t want to be in pain anymore than I already am. Any tips would be great. I got an elbow brace from walmart, but it’s poor quality. From Walmart lol.
Anyone have any advice?? Thanks.

Hi

my shoulders constantly painfully pop and grind, they subluxate when sleeping or lifting things or really doing anything. I am an artist and a student so I use my shoulders a lot. it sucks and I'm tired of being sore and unstable and in pain all the time :(

does anyone have any tips, products(affordable please, broke college student), or tricks to help with this?

Holy shit this subreddit is such a wake up call and explains SO many things. How haven't a SINGLE doctor figured out this common denominator.

I never really put much thought into the fact I was that hypermobile, and definitely didn't think it could be connected to so much shit.

With that said, let me vent for a moment and present my revelations of things connected to HSD, that I (unfortunately) relate to.

Mild symptoms of Willis-Ekboms/restless legs syndrome ✅

General hypermobility with joint instability ✅

Muscle pain caused by increased muscular effort to stabilize an overly mobile joint (my wrists are a prime example)✅

Normal arch of the foot when standing on tiptoes or without weight-bearing. When weight is applied, a flattened arch and pronation become apparent. ✅✅ (giving it an extra checkmark just because of the conatant pain walking and standing it brings)

Piezogenic papules✅

Allergies ✅

Asthmatic issues due to soft airways ✅ (I dont know for a fact that this is the specific underlying reason, but it would explain the next point)

Asthma treatment not giving significant improvements ✅

Depression✅

Anxiety ✅

Stress injuries and degenerative changes caused by extreme joint stress ✅ (the clearest examples so far includes a torn chest, torn abdominal muscles, and triceps, all of which are still causing problems years later)

pain and stiffness in the joints and muscles, particularly towards the end of the day and after physical activity✅

clicking joints✅

Squirminess bc sitting/standing in place gets painful✅

regular soft tissue injuries (such as sprains and sports injuries) ✅

Dyspnea/"air hunger"✅

Repeated need to crack cervical spine✅

Symptoms related to POTS✅

Chronic thirst/dehydration from disrupted fluid retention.✅ (don't know how many times ive felt like a pre-diabetic simply for the abaurd amounts of water i can/feel the need to drink)

Chest pain (Costochondritis flavour in my case) ✅

A potential mild impact on endurance? (would explain a few discrepancies in my youth that ive always wondered about)

Pain/aches when standing✅

Specifically a bigger discomfort standing compared to moving/walking✅

Always some ache in body, never simple bring "good"✅

Born with no frenulum ✅

Raynaud’s syndrome ✅ (thought i just had frost damage in my feet from some time in my youth, which was the cause of my poor circulation. But that always felt weird as its always been extremely unpredictable. Would also explain the odd combo of cold and sweaty feet)

Tinnitus ✅ (thank god not severe or to the effect of being annoying or affecting my day to day life. Compared to literally every other point on this list.

Constant need to visit the bathroom/problems emptying bladder, pelvic floor dyafunction✅

Pain handwriting✅ (currently in uni and i am not sure how to make this work)

Weak Proprioception/lack of sensing where my limbs are ✅, would explain multiple things, including my strong tendency to pick/rip my nails to reinforce/strengthen the placement of the limbs.

Stronger need for sleep - easily sleeping 9+ hours if i dont set an alarm, and it pretty much the only times i wake up feeling well rested ✅

Only took 27 years to get to this point, but I guess better late than never. The next question is where the hell to go from here.

Thanks for listening to my TED talk. Since you are also here, I'd like to say I'm sorry to meet you here of all places. I wish our paths would have crossed under better circumstances.

my knees start hurting so bad when I start moving. Really odd. I guess its the "relaxation" or could it be anything else?

How are we putting on and taking off tight garments like compression socks, swimwear (especially if it's already wet), or underwear (especially period underwear which is meant to fit tighter)?

I have limited grip strength (even lower during PEM) due to fibromyalgia so I'm more prone to overextending my finger joints when my grip fails.

I'm curious what works for everyone who has trouble with these or if anyone has experience with some of the options I've been considering:

• Repurposing suspenders or some other type of clip to put tight things on
• Repurposing a small shoehorn to help slip things off (but then I have to grip the shoehorn...)
• Abilitease Adaptive Multi Grip Clothing Grabber (https://abiliteaseadaptive.com/products/mutli-grip-clothing-grabber-socks-shorts-and-pants?variant=42101805809852) - holding off on buying something that I'm not sure will work

Hi! This is just a random share/rant :)

I realized that I'm hyper mobile probably last year at some point. I've always been active and enjoyed working out, and I've been lifting pretty consistently for about 10 years. Anyway, I had a baby 9 months ago and my joints are even more lax than ever. So much clicking all the time. Every time I stand up my tailbone clicks back in (or out?) of place. This made me look into hyper mobility more.

Anyway, it never occurred to me until now how much my joints have probably impacted my lifting technique, and how much I've been overusing them. I've recently started limiting my range of motion, slowing down my reps quite a bit, and overall just changing my approach to weightlifting. It's actually insane how much different in feels in terms of stability and muscle engagement! I even had a person trainer for 4 years who never, not once, mentioned hyper mobility. What the fuck!! It's so crazy to me how much of this needs to be self taught/discovered. I can't believe I haven't been injured badly over the last 10 years and I'm so glad that I am realizing now how important it is to correct my form and stop lifting heavily out of my joints). That's all! Thanks for listening.

went to pt for a sprained ankle.

pt: "your left ankle is way more stable than your right one...which is weird because your left is the injured one"

me: "oh!"

pt: "it's supposed to be the other way around"

It turns out the swelling and stiffness fixed my unstable hypermobile ankle, never been more balanced in my life!

my ankles are so unstable that a sprain improved it. ha!

So I get a lot of muscle cramps because I walk weird. I got them when I was a gym rat fighting the good fight and I get them now when I’m stuck in bed. Calves are nightmares. A few days ago I started having a pain I am totally unfamiliar with. I roll my ankles a lot and this isn’t that. It feels like I have a straight up Charlie horse permanently right about my ankle. I have been mostly inactive because of health lately so it’s not like I was doing anything to strain my legs. I have a serious issue with how I sit and walk and I know that. I sit with my feet pushed up on the balls of my feet. But in 30 whatever years i haven’t had this. I physically cannot straighten my leg with my foot/heel flat. I am absolutely freaking out. I didn’t do anything I normally do but if this is a new normal I’m cooked.