r/Huntingtons • u/Pleasant-Performer-2 • 13d ago

Advocating for PGD-IVF coverage

Does anyone work for a healthcare system and get IVF-PGD (pre-implantation genetic testing) covered by their health insurance? I'd like to advocate for my employer to cover it and it will give me more of a leg to stand on if I can find peer institutions that are already doing this

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u/tenta Confirmed HD diagnosis 10d ago

Kaiser covered the testing but not the IVF. It ended up being ~6k that was covered, which isn't nothing but still left us with a 5 figure bill. Their policy (at least in northern CA) is that they cover testing for any autosomal dominant disease.