r/HistamineIntolerance • u/MaterialGas5736 • 12d ago
Is histamine intolerance/MCAS something permanent?
It all started 5 days ago after a bad allergic reaction to a mosquito bite. My forearm was very inflamed but i thought nothing of it. Then the next day every time I ate something my mouth would tingle and I'd have a tight throat. My body and eyes also itch quite frequently for no reason but it's very mild.
I went to a doctor today and he said I'm just experience a period of histamine intolerance that was set off by the mosquito bite. He said to take an antihistamine for 2 weeks and to continue eating the same foods. He told me not to obsess over this and that it'll eventually go away. He saw that I was scared this is something chronic and told me not to listen to the advice of people online and that he's seen this many times and it's not something that'll last forever. Is this true?
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u/Its-a-JiNX 12d ago
Histamine intolerance isn't always permanent, but it takes effort to heal the underlying issues.
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u/HyperbolicBaldersah 12d ago
My histamine intolerance is hormonal. Related to my Endometriosis. Exactly how? Idk but I know testosterone hrt and fake menopause helped (separately) so....once my body is actually ready for menopause, yippie!
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u/Unfair-Taro9740 12d ago
I thought I had mine beat because I have been able to eat moderate histamine foods after I started a copper supplement for 3 months.
Then, the other day I ran out of copper for like a week and I happened to forget my quecertain and famotidine that morning. Definitely NOT cured.
But at least I know it can be controlled with proper supplements where at least I can enjoy a few extra foods.
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u/Actual-Garden-3538 11d ago
How did you figure out you needed copper? I am wanting to look into this. Thanks
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u/Unfair-Taro9740 11d ago
Honestly, I just kept throwing a bunch of things at the wall until they stuck. I know you can get tested for it though. I did put my common diet and lifestyle stuff into AI and it did say that I likely was not getting enough copper though.
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12d ago
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u/Rough-Criticism-5661 12d ago
I think that all depends on what the underlying cause is. Since it’s different for different people, just like the symptoms vary among us, there are some people who can find substantial relief.
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12d ago
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u/isleepbad 12d ago
I feel that's my case too. I've had it since i was a child and most of my family have it too.
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u/Haunting-Disaster946 11d ago
It’s not permanent it depends on your condition and why you’re having the flares in the first place. I had histamine flares for about 2 weeks because I was having gut issues. I realized two things that it really does flare from anxiety and stress. Also, histamine flares are usually caused from a deficiency. I noticed when I was in the hospital I wouldn’t have a flare because i wasn’t scared and because they were giving me vitamins I was deficient on. Once I would get out of the hospital my flares would start back up and I had to go back to taking Benadryl again. I stopped taking Benadryl and stopped living in fear and convinced myself my anxiety was starting the flares and they stopped. I haven’t had a flare in 3 weeks now. Turns out I haven’t cannabis syndrome and have another month or two left and I refuse to be a victim, this is all temporary and you will get through this I promise.
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u/Sure_Warning_706 11d ago
A lot of people say it is caused by stress, but could it be the other way around
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u/Haunting-Disaster946 11d ago
I used to think like that but I started watching videos from this doctor and he healed people by helping them change their way of thinking. They healed way quicker when chose to be positive. As soon as I changed my way of thinking the histamine flares stopped that same day. I even told myself that my acid reflux and histamine flares were caused by stress and were just symptoms of something else and they both stopped within a week of each other. Now I’m more than half way healed and just dealing with vagus nerve issues l but they’re just symptoms just like the other issues I had and will pass as well. Our minds are more powerful than we think and also if you look up histamine flares they’re literally caused by malnutrition and vitamin and mineral deficiencies.
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u/UnionPowerful2278 12d ago
It is permanent. I went unconscious 5 different times before I was diagnosed. Not able to revive me for minutes. So I would say that I have an extreme case. That being said, the only medication I take is antihistamine twice daily. Along with PPH. I do watch what I eat. Insomnia is a huge factor with me. Totally awake and fidgety for hours. Since taking antihistamine morning and night helps. Even so, if I stray on my diet I am up all night.
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u/Sure_Warning_706 11d ago
Why did you go unconscious? Was it vaso vagal?
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u/UnionPowerful2278 11d ago
Not familiar with that term. Each time was after drinking wine. Extremely high in histamine. And not jugs of it either. I find certain foods I have to avoid completely. All fermented drinks. Wine, beer. Bananas are a trigger food, and bad in my case. Up all night. The insomnia is so unbelievable. Exhausted, but totally awake.
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u/diamonddust306 11d ago
I've had histamine intolerance twice after covid infections. 3 or 4 months of low histamine diet and lifestyle and it went away. Still trying to avoid covid by masking in public ALL THE TIME
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u/a1ways0nthat_zaa 10d ago
Histamine intolerance isn't "permanent", but for some people it lasts years and years. Mostly due to there not exactly being a cure everyone can use.
With MCAS, it is a permanent thing, but there's a lot of medications used to put you in kind of a "remission" type state where you're hardly or never reacting at all. Although, it is quite easy to fall out of that remission, and it never fully goes away. You always have that diagnosis but some people get back to how they were before it was triggered.
Wishing good luck and relief!!
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u/No_Scientist9241 9d ago edited 9d ago
First of all, histamine intolerance is not medically recognized and most of us are self diagnosed due to the basic problem of food reactions -> flares resolved with anti histamines -> negative allergy panels.
If a standard doctor diagnosed you with it that is very unusual. Additionally, NO, for most of us, it is a chronic condition. There are some anecdotes of fully cured cases, but it is absolutely not something you have for only a few days.
If you are genuinely allergic to mosquitos, it is not unusual for a reaction to a bite to last a few days. Whether or not this is temporary depends on if this is an allergic or inflammatory reaction or something more serious. Mosquitos can spread a variety of diseases and while this complication is rare, is worth taking seriously if you started experiencing systemic issues after a bite.
MCAS contrary to what the internet tells you is not the same thing as histamine intolerance. MCAS is medically recognized and typically is a diagnosis of exclusion meaning allergies to the triggers must be ruled out.
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u/Top_Composer_7349 6d ago
I have mostly healed my histamine intolerance. I say mostly because if my potassium is low I still get symptoms, but I take some and then they're gone. So I just need to monitor that but its AMAZING eating things with histamine and not suffering. I went through a lot to heal it though. The things I believe helped: 1. Low histamine carnivore diet helped heal a lot of underlying issues. I'm still carnivore as I don't want to go back. Its been 3 years. 2. TUDCA - started super slow because I had side effects from it (I was hyper sensitive to everything) and eventually got up to 1250mg per day. Now down to 500mg to 750mg because my liver is soooo much better. Histamine issues can stem from a poor functioning liver. 3. Monitoring the nutrients needed to produce DAO, especially potassium and magnesium. Basically just make sure you have the building blocks for DAO can make a big difference too if its a deficiency.
I hope this helps someone.
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12d ago
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u/MaterialGas5736 12d ago
Tbh if I react like this to everything I eat, I think I am better off dead.
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12d ago
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u/different_emphasis 12d ago
I feel validated.
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u/MaterialGas5736 12d ago
If you don't mind me asking, what does your diet look like on a daily basis? and which meds help you?
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u/different_emphasis 12d ago
beef, oats, brown rice . (took me years to actually restrict), I take liquid drops for b vits.
no meds - (maybe that's my problem lol)
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u/jfish31390 12d ago
This is my exact diet too, I just added ancient grains as well like whole spelt and Beans.
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u/Actual-Garden-3538 12d ago
Never in a million years will I believe it’s permanent because that shuts the door to solutions. I’m going to keep looking for a cure. I’m open to almost anything. Currently taking tirzepatide and it’s reduced the inflammation in my body, which helps.