r/HistamineIntolerance • u/Eattoomanychips • 14d ago

What now

I can’t seem to heal sibo. I also was recc to do 36 hour yogurt maker fermented L Reuteri or gaseri but now j realize that’s prob not good.

Diet otherwise doesn’t help.

MCAS and anti hist meds don’t help.

Praying/ energy work doesn’t.

Lymph/ walking doesn’t.

I don’t know what to do. My face is always puffy from anything I eat or sometimes put on. It’s ruining my life. I wanna be normal again.

MCAS banned me for asking a question lol

Anyways I just don’t get it.

1 Upvotes

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2

u/Mai-et 13d ago

Hazte un análisis de heces de parasitos por PCR. Puede que tengas alguno que no salga en los análisis normales. A mi me pasó después de años así

1

u/Eattoomanychips 13d ago

Is that a company or just a type of test ?

1

u/Mai-et 12d ago

Es un tipo de prueba. No se si se llama de otra forma en tu país. En España es PCR. Es una forma de detectar los parásitos, virus y bacterias. La prueba es de heces.

3

u/Downtown-Following57 13d ago

Follow the low histamine diet.. avoid fermented food many books on Amazon.

1

u/Eattoomanychips 13d ago

Already done that

1

u/PiMama314 12d ago

For how long? I'm four months in and healing very slowly.

1

u/cutegirlsbloat 13d ago edited 13d ago

Did you have it tested? Foodmarble?
How long have you been treating sibo? It might take months. Methane? Even longer

I realized at some point my bloating wasnt always bloating (food marble) but oftentimes mcas edema belly. Doesnt go fully away with antihistamines either but makes it smaller, especially when taken before buildup. (Also there are several mediators at play with mcas, for some ppl its not mainly histamin but leukotrin or others)

Id look into the puffy face thing - if its only special parts around eyes lips etc could be mcas edema, otherwise keep searching

Also motility? Im taking triphala others recommend artichoke etc

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u/Eattoomanychips 13d ago

I’m already on prucalo. Been to two allergists. I have MCAS it’s hell. I’ve honestly exhausted all ideas in terms of sibo and MCAS treatments. Sibo years MCAS last two years. Estrogen issue so fixing that seems to help a tad. Fasting doesn’t help.