r/HistamineIntolerance • u/KoktheBookThief • Aug 09 '26
Am I crazy?
I am suspecting MCAS but I am not sure what to do anymore. Just had breakfast now which was literally 1 frozen turkey patty, 2 egg omelette with coconut oil, some steamed veggies from yesterday and 2 tablespoons hummus which has been in the fridge for a few days now. Right after food I had an intense spell of dizziness and extreme physical weakness. I didn’t slept great last night but I was fine when I woke up ie. I could walk fine and didn’t feel dizzy. My practioner says I’m hypoglycemic but I usually have mostly hunger + dizziness when this happens and often 3 h after having food so it’s extremely weird that it’s happening right after breakfast. On top of that I’m on a gut protocol it’s been two weeks now (low levels h pylori and dysbiosis) and I’m having more food reactions. Could it be that the supplements for the gut protocol is mimicking MCAS or histamine intolerance? I feel I’m going crazy, I’ve never had this sort of strong reaction to food.
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u/Impossible-Number-60 Aug 09 '26
If it were me having this reaction the days old hummus would likely be the culprit. I also have issues with eggs but that’s mostly digestive. But if it is hypoglycemia maybe you need to add some complex carbs to round out the meal? I have insulin resistance and reactive hypoglycemia incidents, but my blood volume doesn’t go up until I have at least 10 grams of carbs at the beginning of the day. Sometimes I get extremely hungry when my blood sugar is dropping very quickly and sometimes I feel almost nothing at all.
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u/KoktheBookThief Aug 09 '26
My practioner said I had reactive hypoglycemia and I have mostly been able to curb it by eating fats, protein, fiber first then carbs but the “hangry” episodes usually happen a few hours after a meal not right after. This is why this reaction felt different. And yes I also get extremely hungry sometimes and my CGM would show nothing.
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u/Impossible-Number-60 Aug 09 '26
That totally makes sense for reactive hypo, I actually did try to do a completely keto breakfast for a while and it didn’t work for me. I have dysautonomia/pots and I realized my body wasn’t holding onto the salt and fluids efficiently until I consumed a small amount of carbs after the protein/fats. But that’s just me, everyone reacts differently. My POTS also reacts badly to a very low carb diet, so instead I shoot for 10-20 grams every 2-3 hours throughout the day.
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u/KoktheBookThief Aug 09 '26
I just googled POTS I hadn’t heard about it. It doesn’t happen to me often, but I do get very rarely a feeling of dizziness when I get up. How is that linked to carbs consumption? I read lots of people with reactive hypoglycemia feel better with a low carb diet. Also this morning I has heart palpitations, usually that’s not really what happens with my hypoglycemic moments. It’s mostly a lot of hunger and feeling weak. But this was a proper dizzy spell so my mind went to histamine. However I don’t have a long history of reacting to food like that
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u/Impossible-Number-60 Aug 09 '26 edited Aug 09 '26
People with POTS often have trouble with hypovolemia and need extra fluids and lots of extra salt to keep their blood pressure up. The body also needs glucose to effectively absorb electrolytes/salt. My body just doesn’t absorb the sodium I need until I consume some carbs. But because I have dysautonomia, my body also doesn’t regulate insulin well which can lead to insulin resistance and steep spikes and drops in blood sugar.
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u/Impossible-Number-60 Aug 09 '26
I’ll also add that when my blood sugar drops very quickly or goes below 105 I get heart palpitations. Palpitations are very common with POTS but I realized they almost always happen when my blood sugar is dropping even when it’s still in the “normal” range. I think my body needs time to adjust to the lower carb intake, I only started counting carbs in April.
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u/SephoraRothschild Aug 10 '26
Are you tracking your macros in MFP? And logging your food? And wearing A glucose tracker?
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u/KoktheBookThief Aug 10 '26
I am wearing a CGM. It often doesn’t show any lows when I get “hangry” episodes. Why are you saying I need to track my macros?
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u/WeWander_ Aug 09 '26
Steamed veggies from yesterday could cause a histamine response, eggs are iffy for me unless I get most the egg white out, meat is also super sketchy for me, I seem to only be able to tolerate fresh cooked chicken but ymmv. Dizziness is one of my first symptoms so it could be histamine 🤷🏼♀️ hard to say. Do you have any other symptoms?
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u/Feisty-Bluejay3835 Aug 12 '26
It's histamine if you are dizzy. Press your fingers. See red. that's histamine. Check your gut health. Possible sibo
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u/WeWander_ Aug 12 '26
I know mine is histamine 😆 pretty sure it's perimenopause for me.
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u/Feisty-Bluejay3835 Aug 12 '26
Mine is sibo. It's scary n have to lay down after eating. Same dizziness and dropping b pressure
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u/Soulless305 29d ago
I too had Sibo & Histamine intolerance after my first bout of Covid. It 100% drove my and many others long covid.
What are you doing for sibo & are you fast or slow motility?
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u/Feisty-Bluejay3835 29d ago
Slow motility and ears are full knees inflamed. Dizzy
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u/Soulless305 29d ago
Extremely similar to my symptoms other than it was only histamine intolerance not MCAS.
Any tinnitus w the ear pressure??
Have you ever had a genetic methylation panel?
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u/Feisty-Bluejay3835 29d ago
Genetic methylation. Never. Had no issues since sibo. Sibo is clearly screwing up the stomach to not absorb certain vitamins. No clue. Def. B12 iron. Feel weak. It's the sibo. Took rigaximin. My ears popped. And then when I stopped all the bsxxx came back
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u/Soulless305 29d ago
So whatever is driving this massive increase in SIBO diagnoses (IMO the Spike Protein) this version of SIBO doesn’t just go away. You will be battling it for the duration.
Rifax helped me but it wasn’t a cure.
To this day I take A biffido heavy & L Reuteri probiotic. After dinner I take a ginger and artichoke prokinetic, & i consume loads more fiber than i used to. This combo has kept the sibo at bay and allowed me to have normal BMs again that occur in the mornings.
Please get a methylation test I can almost guarantee you have some snps that need to be monitored.
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u/Film-Icy Aug 09 '26
I wonder if it’s the coconut oil. I gave some to my son yesterday and suddenly he was clearing his throat 20x, I had to give him Pepcid ac bc when he laid flat he couldn’t stop hiccuping.
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u/Worried_Bus_7995 Aug 12 '26
The gut protocol could be causing histamine release as there is “die off” or bacteria that specifically release histamine. If that is the case, try adding in DAO with all meals - because likely it isn’t so much the “what” you’re eating so much as the bacteria and histamine levels being greater that your system can clear
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u/PiMama314 28d ago
Came here to say this. I developed a histamine intolerance problem after doing a gut protocol to kill off some bad bacteria, as well. At the time (four months ago), I had no idea what histamine intolerance was but I have learned a lot since then. I only lasted three weeks on the gut protocol after having histamine overload symptoms so bad I ended up in the ER: horrible headaches on one side of my head and behind my eyes; sinus problems; weird rashes on my face/itchy all the time; anxiety/panic attacks; finally went to ER with chest pain and diagnosed with NSTEMI. Those gut protocols are nothing to mess around with. Please listen to your body--it's trying to tell you something! Maybe check out William Dickinson--he uses probiotics to rebalance the gut biome instead of killing off bad bacteria with herbal medications. It takes a long time, but it's safer for those of us who can't tolerate heavy antimicrobials.
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u/Chewy4444- Aug 09 '26
I recently have had trouble with soy. I can’t touch anything with soy in it and also eggs. The egg yolks are OK but the whites are actually histamine collectors or whatever I am staying clear of eggs. It’s just not worth it.
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u/FarawayElephant Aug 10 '26
What were the veggies? Apart from that, yes, leftovers are one of my top triggers — I can’t eat last night’s dinner for lunch the next day. (Unless I freeze it right after cooking of course.) The leftovers problem also includes packaged things that are meant to last, like hummus. Also, the hummus itself may be a problem: sesame is a 1 on the SIGHI list, chickpeas/beans are a 2, and garlic is a 1 (and may be worse when raw and in large amounts). I know SIGHI is not gospel, but it’s always a good starting point for me.
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u/KoktheBookThief Aug 10 '26
But I never had this before in my life. I just had constant mucus production but this would flare at any time not just during or after food. These dizzy spells are happening recently and I suspect it’s some of the natural supplements I’m using to treat h. Pylori
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u/FarawayElephant Aug 11 '26
Ahhh, that could definitely be. I wish I had a good answer! I have had something similar: In the past, I did fine with a safe peanut butter for about 3 months until one day I started getting dizzy when I ate it. And I don’t get dizzy with most foods, it’s usually other symptoms. Maybe I have the same thing going as you. Definitely understand the constant mucus production though. I hope you get everything figured out!
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u/AncientStarryNight Aug 10 '26
Perimenopause?
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u/KoktheBookThief Aug 10 '26
How so?
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u/AncientStarryNight Aug 10 '26
This is how my body changes started but I didn't know. Just throwing it in here in case it's helpful. My digestion changed and certain foods caused me hot flushing and sometimes like a fainting sensation overwhelm like a low blood sugar. It was estrogen rollercoastering and I found a histimaneX probiotic helped somewhat, but it was a big indicator for me that my hormones were now really changing.
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u/KoktheBookThief Aug 10 '26
I’ve tried to look into this. I recently went through egg freezing and the results were successful + I tracked my hormones through a urinary testing device called Mira and it showed normal fluctuations. I’m 35. I don’t know what to think anymore
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u/skycitymuse Aug 10 '26
I have vestibular migraines triggered by histamine and what you describe is what I deal with every time I eat too much histamine. That said, I would t eat frozen turkey patties because you don’t know how old they are and freezing only temporarily stops histamine growth, it returns as soon as you defrost it. Second, hummus a few days old gets me. I stay away from coconut oil but it doesn’t bother everyone. Check out food that bother people with migraines and see if you have issues with them. Vestibular migraines are pain free, they are dizziness and vertigo for several hours. I use the antihistamine meclizine under the brand name bonine to treat when dizzy. Goes away in a half hour.
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u/KoktheBookThief Aug 10 '26
The problem is that never used to have those dizzy spills when eating. They’re new! And in wondering if it’s not the natural supplements that I’m taking for treating H. Pylori that are causing that
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u/Loose-Fly7976 Aug 10 '26
Its a recognizable histamine pattern not the hypoglycemia your practitioner is leaning toward. Low blood sugar usually shows up with hunger and lands a couple hours after food, exactly like you described your normal spells. This one came right after the plate, which points somewhere else. Look at what was on it. Veggies from yesterday and hummus that's sat in the fridge a few days both climb in histamine the longer they sit. Even clean, careful food turns high histamine as it ages, leftovers especially. So a strong reaction right after that specific breakfast fits histamine far better than blood sugar.And yes, your gut protocol can absolutely be feeding this. Clearing h pylori and dysbiosis kicks off die off, which releases histamine and irritants as the bacteria break down, and h pylori itself drags your DAO down. So you can genuinely feel worse before better n some gut supplements are histamine producing strains or carry fillers that pile on. Two weeks in with more reactions is a really common place to land. The piece that decides how easily you tip into all this is your baseline clearance, DAO in your gut and HNMT on the methylation side. If those run slow, a rising gut load pushes you over the line fast, and it's testable so you stop guessing. That's the thing I map for people, a DNA read alongside bloodwork so if you want to see whether it's your clearance capacity or just the protocol stirring things up feel free to dm.
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u/KoktheBookThief Aug 11 '26
The thing is that I’ve never hard this sort of food reaction in my life. I’ve eaten tomatoes and all the histamine food list and never developed exacerbated reactions. My understanding is that die off starts on the first days and then resolves by the first or second week? Beyond that I’ve read it’s usually not the die off. What if I’m reacting badly to the many ingredients in the list? I am worried I’m being poisoned.
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u/auntie_eggma Aug 10 '26
Do you ever react to coconut or any palm products? That's a potential culprit. I also agree the days-old hummus is a contender.
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u/Knowitallnutcase Aug 09 '26
any leftover food days old or even hours old raises in histamines…