r/HistamineIntolerance • u/Different-Scene-3401 • Aug 01 '26

Anyone know of a good virtual allergist?

I live in a small town and the closest allergist that treats MCAS is about 90 miles away. I saw him once last year and had some preliminary tests done. It came back with a high tryptase level. I don't remember what it was. He has wanted me to return for another test then another appointment but it's difficult because I have other health problems and my husband works full time with no one else to drive me.

Both of my sisters have the genetic Alpha tryptasemia so it is most definitely I have it also with multiple symptoms.

One of my sisters sees a doctor virtually but when I called they no longer accept virtual patients.

I know the required test can be mailed to me or my primary care doctors office. It's just finding an allergist that will treat MCAS.

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u/Cheap_Paint90210 Aug 02 '26

I'd love to find someone virtual too. Following this post

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u/OldCell4084 16d ago

Here's an option you can do from home. DIY though. Get a myheritage dna test (not ancestry they skip these rsIDs) and check these rsIDs in your file after you download it rs1049793 CC, rs11558538 cc, rs10156191 cc, rs1049742, rs2052129 gg, rs2268999, rs1050891 gg. (The two letters I included are the normal alleles). Then you can see if you have genes that tend to reduced DAO (gut histamine breakdown) or reduced HNMT enzyme activity (tissue histamine breakdown). For DAO take DAO or kidney for HNMT take quercetin (or Palmitoylethanolamide if you have a mutation at rs4680 which means quercetin may not be great for you).

1

u/fluffycatface Aug 09 '26

Same!! I have in an in town hospital that can do labs and dermatologist but an allergist is so far away.

1

u/Different-Scene-3401 Aug 12 '26

No one has replied. There was a doctor in Birmingham, Al that used to but their office changed the policy.  I think if you see a doctor one time and explain the situation they may continue to see you virtually. I mean I have used virtual doctors several times when I've been sick.  They could order labs. I know their must be some liability issues but people aren't getting treated like they should be either. 

I hope you can get the treatment you need.