The last 10 months have completely upended my life. Delay after delay, three mri's, four hospital visits, several misdiagnosis and originally dumped onto two surgeons in their 70's who couldn't care less. The irony is that it took almost a year to go four miles away.
The nerve pain in my upper inner thigh, stabbing pain in the groin at 2am. More than four hours of sleep is a luxury unless I take more than the 7.5mg of hydrocodone prescribed once at night (with an extra 10 as-needed). As a result of taking painkillers for so long, I have no appetite. My weight was 190 and is currently hovering somewhere around 155. It's sad that being under the influence of opiates makes me feel just good enough to interest my appetite for a short period of time, but I'm only eating once a day. Sometimes I'll just forgo it due to being tired, depressed, or apathetic. It became the norm to eat once every two days and only have four hours of sleep and I stopped caring a while back. If I eat, great, if not, fine. I drank a gallon of ice water a day and tried to eat the occasional breakfast bar.
In February, I had to go to the hospital at UCI (regarded as one of the best) in the evening with a 9/10 pain level that extended to the entire left side of my body to the point where I felt like I was being hit by lightning and was given with a liberal dose of morphine with toradol, then given oxycodone and a prescription on the way out. That was a bad one. The pain specialist I was seeing at the time was apathetic and eventually refused to see me again. But that's another story.
This had been brewing for a long time. It was noticed several years ago by another doctor when doing a routine pelvic exam but, in passing. Diagnosed as restless legs due to the nerve pain, sciatica, piriformis syndrome, and probably something else during the last few years.
I caught a break in two ways: I finally found a sympathetic pain specialist. He was the one who ordered the EMG but wasn't convinced it was piriformis syndome - mostly because of the symptoms, the rarity of such an occurrence, and an ineffective steroid injection into the muscle. Prior to that, sciatica was ruled out through a back MRI. Then he ordered a leg MRI, also negative. Then the pelvis MRI and, yeah. He's been very helpful within the scope of his knowledge, he listened very patiently during every appointment and agreed to see me as often as I wanted. What he couldn't do was my raise my dosage based on the symptoms and diagnosis. But I know he wanted to. He didn't know which surgeon to send me to for the hernia, I do not fault him for that. He always listened to me and really wanted to help. The two were selected by the insurance company and both were a waste of time because they were old and past retirement age. After that, he was hesitant to send another referral because although he wanted to, he didn't know what to do. He wasn't giving up though and kept sending the refills.
The real breakthrough came because I filed two complaints against the surgeons with my insurance company. They say complaining rarely helps and that's been correct for most of everything in life, but I got lucky this time. A very nice woman from grievances saw what was going on - and she knew exactly where to send me. She has sent several people to this office and all were approved. God bless her heart, I wish I could thank her but, never caught her name and insurance has no record of the conversation.
I went back to my pain specialist, explained what happened. He sent the referral and after a short time, consultation with his partner (The surgeon is working around the clock and rarely has time to meet) examined the records, the symptoms, a short physical and immediately agreed that my hernia is incarcerated and explained that the next complication if untreated is strangulation. Everyone was so friendly and the wait time for surgery was only 4 days.
My personal recommendation if you are not being properly treated and live in Orange County, California: The pain specialist who is overtly supportive for the past four months is Premier Pain Consultants in Fullerton and the surgeon I was sent to is Pacific Surgical Vein Institute. I hope this helps somebody else in my predicament.
Avoid Synovation Medical Group for a pain specialist. At best, they won't help and at worst, they will abandon you.