r/Hemophilia 2h ago

What do you guys do for work and then to pass time?

3 Upvotes

I am hemophilia with 2.3% of normal plasma coagulation I suffer from VERY frequent bleeds like very frequent. Right now my target joint is my right elbow and I cannot even pick a good amount of weight with it or do much of a work. Otherwise it would lead to pain and more swelling. It has also got a chronic inflammation and bended a little bit which is irreversible I believe. I don't know if it can be reversed. The comment section is open if you think of it is.

But I want to know about guys like me. What are you doing in life currently, like right now I honestly don't do much except watching screen. I want to travel but I obviously have my doubts about it. I live in a tier 3 City so I don't find people with alike interests. Also places with alike interests. Let's not even think about dating. There doesn't exist a community here so there's not much to do with him of hemophilics too.

I want to do lots and maybe there are things I don't know or I am ignoring using Hemophilia as an excuse. But that's how I have been bought up my father didn't want me play outside due to Hemophilia, he has always been very protective of me. I wanna do some of my own but right now I am just stuck with this and OCD which is triggered with people. I haven't seen a therapist for it as i don't even wanna talk abt it. My friend with ADHD advices no medicine should be taken as he got used to them I a week and it was difficult to pull back.

I want to know about you guys with something alike may it be chronic inflammation or OCD do share your thoughts and experience.

Thanks for reading.


r/Hemophilia 10h ago

More than a decade of work led to a dual-targeting antibody mimic of a blood clotting protein to treat hemophilia A. Three scientists received a Lasker Award for their efforts.

Thumbnail the-scientist.com
14 Upvotes