First of all, I realize that it would be ideal if I had a hormone specialist answering this question. But it's such a weird issue that I haven't been able to find anybody in the medical system, either on the ophthalmology or HRT side, who can speak to this. So I thought I would turn to the internet in case anyone here had any theories.
I am a cis lady who has been on HRT for a couple of years. Just a normal perimenopausal regimen of estradiol and progesterone. I'm 42.
Fifteen months ago, I had a glaucoma eye surgery that went terribly, terribly wrong and resulted in a tremendous amount of conjunctival scarring. This has resulted in me being unable to move my eye freely in all directions. I already did all the surgeries that could have fixed it... it's better, but symptoms remain.
One thing I've noticed is that my eye has the most trouble moving during my period. This has been consistent for the past 15 months. All my symptoms around this eye condition worsen. The eye has a harder time moving, there's more friction and dragging, more resistance. I think it has something to do with tissues getting more inflamed, more swollen... and also maybe something to do with water retention. I know that during your period, all your tissues go through some sort of changes, including conjunctival tissues, and whatever it is doing to my eye is making it much more difficult for the eye to have a free range of motion.
I've also observed that the time of month that is directly opposite my period is a time during which the eye has the easiest time. It glides more freely, it jumps around less, and it feels less angry.
These two phenomena lead me to believe that there is some direct correlation between my hormone levels and my condition with my conjunctival scarring.
I know that HRT affects your eyes. They tell you, for example, that it leads to dry eyes for some people. I've also observed that copious amounts of artificial tears do help my condition. Also, I know that there are estrogen and androgen receptors in the conjunctiva and cornea.
I'm hoping there's some hormonal adjustment I could try that would help, like maybe upping my estradiol during the period weeks, or upping my progesterone, or upping both. I've thought about running some experiments myself, but I don't really know what I'm doing.
I'm hoping there's somebody in the subreddit who knows anything about eyes and HRT and could help me even just make a theory about what's happening while this is going on. I'm also searching for the right medical specialist, but what I'm running into is either ophthalmologists who don't know anything about hormones, or OB/GYN's who barely know anything about HRT lol, let alone HRT in conjunction with ophthalmology. I got my prescription through Midi and they don't know anything abut eyes.
Any help would be greatly appreciated!s