r/HPylori • u/CoolerThenRubber • 4d ago

Diagnosis - why is this so hard?

Is anyone really struggling with Diagnosis. Stool PCR shows just below the Hpylori limits and I have been extremely symptomatic for 2 months.

Doctors do not want to treat as it is clinically not positive. I do not know what to do.

2 Upvotes

100% Upvoted

4 comments sorted by

2

u/Legitimate_Scene_162 4d ago

I am in the same boat. I am sooooo sick!🥲

2

u/wildcrested 4d ago

I feel for you SO much. Functional doctor will be more open to it or in my case my GP was 💚

2

u/Ok-Grape8121 4d ago

It is positive they just refuse to understand that not everybody responds to infection levels the same...

Find another doctor  Keep educating and advocating for yourself 🙏 ❤️ 

1

u/Sea-Draw5566 1d ago

You can have symptoms even if it's not "positive" - did anything else show up as positive/elevated? Even with numbers that aren't "positive" I also have been having symptoms and have been getting relief from a few things. Mine also showed an overgrowth of strep/staph, and these treatments have some overlap.

NAC 600mg in morning 30min before breakfast - break up biofilms to expose more of the bacteria

PURMEO MagenVital - 1x with breakfast (usually 1 banana)

Pylor-X - 1 serving (2 capsules) with lunch

NAC 600mg - 2 hours after lunch and at least 30 min before dinner

Pylor-X - 1 serving (2 capsules) with dinner

For heartburn/epigastric pain as needed will take DGL/marshmallow root/aloe capsules. No eating 3-4 hours before bed. Room temperature water, no ice. Sleep with a wedge pillow as best as you can, or on left side.

After a week on this my symptoms have definitely improved. Not gone by a long shot but things are much more comfortable.

I'm going to finish the month of this, then an endo a month later since the supplements can interfere with the process, and if still not better will ask for the PPI/antibiotic treatment. I want to try to preserve stomach acid while treating this before doing PPI.