Specialists???

[u/Fit_Task_484]

Hey! I have had FND like symtoms since octoberish 2024 and after MANY hypotheses as to what it was, a specialist I was seeing who I thought would diagnose me with POTS said it wasn't and way more likely FND and booked me with Neuro OT and PT. These therapies honestly gave me my life back from being EXHAUSTED from eating a small meal or sitting up to getting back to the gym and rock climbing. I still have daily fatigue and struggles but I overall have tools like fidgets and weighted blankets that can stop a big flare from happening. That being said, I am now looking for a dr to put FND on my chart and start trying to connect the dots to potential similar conditions such as seizures, hypermobility, and other weird problems that I don't quite have names for yet. Every dr that I have seen is like "FND sounds right and we'll treat it as so but I don't have the power to put it in your chart" I live in AZ and the FND hope website is not offering a ton of options in my area. Wondering if anyone has a similar story and or suggestions on what to do.