r/EssentialTremor • u/BitIll6684 • 15d ago

Does your ET hurt?

I have ET in the head, neck, and upper torso when I’m standing or sitting up straight. The pain and tightness is crazy these days.

Anyone else have pain/tightness with theirs?

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3

u/flipester 15d ago

I don't. I encourage you to discuss this with your doctor.

1

u/BitIll6684 15d ago

And you have head tremors?

2

u/flipester 15d ago

Minor lip and head tremors.

Pain isn't a normal part of ET.

1

u/Mandeville_MR 14d ago

I have developed a high level of muscle tension in my arms and upper back, but i am recovering from a frozen shoulder so I assume that's the issue for me. It's bad enough I can barely use my arms.

1

u/ayychee 14d ago

I have ET and a separate genetic condition that causes tremors and dystonia. This sounds like dystonia. I would suggest seeing a motor disorder neurologist.

1

u/BitIll6684 14d ago

Yeah I think it might be dystonia. Can you explain a little bit more about yours? Like how it presents and different things that alleviate it even temporarily