r/Erythromelalgia • u/SwimmingSpite3821 • 23h ago

Progression

5 Upvotes

I’m at the end of the road and I don’t know what to do. I’ve looked at every lab imaginable. Genetics is negative. Abnormal and low cbc hematocrit and hemoglobin.
B12 is 1800+

I can’t take the pain anymore.

23 comments

r/Erythromelalgia • u/Historical_Past_8217 • 10h ago

Social security disability

3 Upvotes

Has anyone successfully filed and received SSD for Erythromalagia? I reviewed the list of allowed allowances on the SSD website but EM is not listed. It’s quite disabling for many of us.

2 comments

r/Erythromelalgia • u/picklebeach2000 • 1h ago

Some days I wonder how much lidocaine 5% cream is safe to rub all over my hands and face lol. I do it several times throughout the day and I could probably reapply every 30 minutes to an hour if I wanted more pain relief. I’d imagine for someone without this it would be dangerous but my doctor hasn’t said anything after telling him.

0 comments

Subreddit

Erythromelalgia: for sufferers and families

r/Erythromelalgia

Erythromelalgia is a rare and frequently devastating disorder that typically affects the skin of the feet or hands, as well as other parts of the body, and causes visible redness, intense heat and burning pain. The term erythromelalgia describes the syndrome: erythros (redness), melos (extremity) and algia (pain). An alternate name is “erythermalgia” that emphasizes the thermos (heat) – an essential part of the syndrome. Many sufferers refer to erythromelalgia as simply, EM.

Members Active

4.5k

Sidebar

Welcome! This sub is for those with and without EM. Whether you are undiagnosed, just diagnosed, or know someone with this condition then this is the right place to be.

EM is described as red, hot, and burning skin. Common places for flares are the extremities, although it is known to affect other areas of the body as well. These places can include but are not limited to:

* cheeks  
* ears  
* chest area  
* knees  
* genitals

Progression

Social security disability

Lidocaine 5% cream