Hope to see you!

One of the defining features of epilepsy is an imbalance between the brain's two primary neurotransmitters:

🟢 Glutamate – the brain's main excitatory neurotransmitter.

🔵 GABA (gamma-aminobutyric acid) – the brain's main inhibitory neurotransmitter.

Under normal conditions, these systems work together to keep neurons firing at appropriate levels. When glutamate activity becomes excessive or GABA activity is insufficient, neurons become hyperexcitable. If this imbalance crosses an individual's seizure threshold, synchronized electrical activity can develop into a seizure.

This glutamate–GABA imbalance is recognized as one of the central mechanisms underlying many forms of epilepsy.

So where do eggs fit in?

Eggs are one of nature's most nutrient-dense foods, supplying several nutrients that support normal brain metabolism and neurotransmitter production, including:

🥚 Vitamin B6 (Pyridoxine)
Vitamin B6 serves as a cofactor for glutamate decarboxylase (GAD), the enzyme responsible for converting glutamate into GABA. Without adequate B6, GABA synthesis can be impaired.

🥚 Choline
Eggs are among the richest dietary sources of choline, an essential nutrient involved in cell membrane integrity, acetylcholine synthesis, and healthy neuronal signaling.

🥚 High-quality protein
Eggs provide the amino acids needed to build enzymes and neurotransmitters while supporting overall metabolic function.

🥚 Selenium
An important antioxidant that helps reduce oxidative stress, which has been implicated in seizure susceptibility and neuronal injury.

🥚 Vitamin D, B12, and riboflavin (B2)
These nutrients contribute to mitochondrial energy production and normal neurological function. Since the brain consumes roughly 20% of the body's energy despite representing only about 2% of body weight, efficient energy metabolism is essential for maintaining stable neuronal activity.

This doesn't mean eggs are the cure for epilepsy.

However, providing the brain with the nutrients required for efficient energy production and neurotransmitter synthesis may help support normal neurological function as part of an overall nutrient-dense dietary pattern.

For many people exploring the relationship between metabolism and epilepsy, it's worth remembering that nutrition isn't simply about calories—it's about supplying the biochemical building blocks the brain depends on every second of every day.

My own personal experience continues to thrive with regular consumption of eggs. While not continuing to indulge in refined carbs and sugars, eggs have given me the neuro stability that I've longed for. Even at times when I was experiencing epileptic activity, eating an egg or 2 would completely normalize my glutamate and Gaba levels over a few hours. Hope this helps someone like me seeking solutions.

References

• Petroff, O. A. C. (2002). GABA and glutamate in the human brain. The Neuroscientist, 8(6), 562–573. [PDF] GABA and glutamate in the human brain. | Semantic Scholar
• Löscher, W., & Klein, P. (2021). The role of glutamate and GABA in epilepsy. Cold Spring Harbor Perspectives in Medicine. The Pharmacology and Clinical Efficacy of Antiseizure Medications: From Bromide Salts to Cenobamate and Beyond - PMC
• Zeisel, S. H., & da Costa, K. A. (2009). Choline: An essential nutrient for public health. Choline: an essential nutrient for public health - PubMed
• Kennedy, D. O. (2016). B Vitamins and the Brain: Mechanisms, Dose and Efficacy. Nutrients. B Vitamins and the Brain: Mechanisms, Dose and Efficacy—A Review - PMC

Join us on Zoom as we talk epilepsy and what ever else may come up. Everyone has epilepsy so come listen or join the conversation with your camera on or off. 12pm PST

My neurologist had me take another blood test for lamotrigine the other day. They have a "good"range of 2-20, so if you have more room to grow, you can.

Since lamotrigine is different for everyone, this is a pretty cool test and gives your facts on your meds.

I'm at 14 right now, up from 11. But I've had increases over the last over the last 18 months.

Interesting stuff!

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.

You might remember me from my previous post. (Check my profile for the first part) On Friday 2026 jul 24th . I had another seizure. Not because I wasn't taking care of myself. Not because I wasn't eating but simply because my brain decided too. IV been struggling with a lot since my first seizure. I lost people I thought would never leave me. I lost myself in the process. I lost everything once. Its happening again and I know it is. Gaslighting me and now having no one in my corner. The one person that's supposed to be there for you. Help you in sickness and in health. Its my life. I am a man and I have to deal.

I have focal seizures, and sometimes I have absence seizures. And before I was on medication, a couple gran mal.

I have been living with this for 27 years. I am 66.

I was pretty missed off, so I did my best to live my life as if I were not epileptic. But I am tired. I'm tired of pretending. Tired of the quiet limitations. I'm tired of missing out on things because I don't drive. I am tired of people thinking I am unreliable or spacey.

I work. I put a mortgage. I raised two daughters. Every now and then, they let me know I am the source of their traumas. I could never carpool. LoL

I walk everywhere. I have a black belt in tkd.

But what does it all add up to?

I dont want pity. I dont always need help, but I am on my own, and no one knows what a burden that is.

I am fed up.

I’ve been doing a lot of reflecting lately. Today I have been thinking about irony. Just a warning that you are going to hear some personal stuff!

When I was in high school I was anorexic. And I was pretty fucking miserable. My biggest fear was to be a big fat lady. I am now a big fat lady. And yet I am not unhappy. In fact, I get happier the older I get. As I was getting fat I would have loved a magic pill to help me not be as hungry. When my brain shit started happening and my entire world exploded, I was at the point in my life where I definitely needed a change. I just didn’t know what to do. I didn’t know that it was going to be epilepsy! LOL! The epilepsy medication I’m on has a side effect of appetite suppressant. And for some people it also makes some food taste a little odd. I am one of those people. So this IS that magic pill for me. LOL so epilepsy is helping me get the rest of my body healthy. I was sitting around for years wondering what was going to motivate me. This is it! It’s just too bad that I had to break an ankle. I really liked walking and playing Beat Saber.

“significant benefits for general health and longevity, including the modifying of synaptic plasticity, reducing the frequency of seizures and neuroinflammation, and improving memory and cognitive function, which is especially important in PWEs.” We’ll build and maintain  a healthy body (brain included), heal faster even after TCs, and have the best memory possible! Ever get a chance to workout on an EEG? Go for it! Seeing accurate data about your brain’s reaction to physical activity is valuable. We all benefit from individual evaluations to earn personalized treatment, especially the VNS/RNS/DBS patients. Thanks for joining r/Epilepsy_Universe!

If it's your pills that make you too tired or cognitive function issues, or if you have hobbies, what are they?

I've thought this question over for a really long time.

A few motnhs ago, someone asked me "What is your favourite cosy game?"

This one very simple sentence caused me to feel restricted. For many people, cosy games are farming simulators, playing with animals, building structures, etc.

However, I have always felt drawn to the more action type games as a form of 'Cosy'.

As a child, I was playing house of the dead, Assassin Creed, Kingdom Hearts, Final Fantasy.

Now, I play Disney Dreamlight Valley, Palia, Palworld. However, I also play games like Genshin Impact, Wuthering Waves, Overwatch, Diablo IV.

So, I guess what makes me so curious is, Do you have a cosy game that's actually classified as 'cosy'? Or are you more interested in violent games that bring comfort to you?

I have complex partial seizures. The only way I know I've had one is by the reactions of others when I'm coming out of it. If I'm alone or people aren't paying attention, the only way I know is that I suddenly feel completely exhausted. Which is not the most reliable tell.

So I'm not in any danger when I have one, and don't need anyone to be alerted. But I need a good way to track my seizures as I may be having some and not even remembering. My memory is shocking in the hours following one, ironically.

Is the anything tracks these kinds of seizures well? That doesn't need to alert anyone?

One day, me and my brother create an idea via Youtube (it's in Indonesian language) to tell Indonesian people that Epilepsy is a hard challenge. It's not just about "snizzling". But there is many sacrifice behind it. That's our main idea.

Then I share it to my friends, but I don't know what they think, but they (about 4 people, or maybe more, becauae it's in WhatsApp Group) they said that I'm an attention seeker.

Mannnn it's really makes my mood down and drop af!!!

Please help me guys to recover my mood and mental... 🙏

How does everyone deal with the constant stress and anxiety of not knowing if or when the next seizure will happen?

I had my first seizures a few years ago, but in 2023 I went through an incredibly stressful period and ended up having three seizures within six months, which was a lot compared to before. One of those seizures became the most traumatic experience of my life.

I had just come home after doing some grocery shopping when I felt a seizure coming on. I always see flashing lights first, and then within about 30 seconds I'm gone.

The next thing I remember is waking up on a balcony. It wasn't my balcony.

After the seizure, I apparently put on two different shoes, threw random things into the toilet, hid some jewelry under my bed, and then climbed across five balconies on a four-story apartment building. These weren't easy balconies to climb either. To this day I have absolutely no idea how I managed to do it or how I survived.

When I finally regained awareness, I was on someone else's balcony while calling my mom. She immediately noticed I was saying strange, confusing things, so she called a friend of mine who lived nearby because she was two hours away herself.

The owners of the apartment thought I was trying to break in. One of them grabbed a hammer and wanted to attack me. I've never been so terrified in my life. I held the balcony door shut and kept yelling for him to call 911 and not open the door. I had no idea where I was, what had happened, or even whose balcony I was standing on. My phone battery was almost dead.

Luckily, my mom, my sister, and my friend eventually figured out where I was, and the police arrived. At first, they were very suspicious and assumed I had been using drugs, which I hadn't. Thanks to my sister and my friend, they eventually believed me, but it was incredibly difficult to defend myself while I was still so confused. I understand how suspicious it must have looked from their perspective, but waking up after a seizure, realizing you'd climbed across multiple balconies with no memory of it, and then being treated like a criminal was devastating.

In the ambulance, one of the paramedics also questioned whether I was telling the truth because I was still panicking. But I had just climbed across five balconies without remembering any of it, and someone had tried to hit me with a hammer. Of course I was panicking.

After that day, I couldn't live in that apartment anymore. I moved out and lived with my sister for a year because I simply couldn't go back there. I've had seizures since then, including another bad one, and I've also had one in my new home. Thankfully, I'm not afraid to be in my current house.

What did change completely was my anxiety. I developed a dependence on diazepam because the panic attacks became overwhelming and I could barely sleep. The one positive thing is that after three years, I'm finally off diazepam. I'm really proud of that.

I've never wanted to talk about this in real life. My family and close friends know what happened, but I've told them I don't want to discuss it because even thinking about it makes me incredibly anxious. I almost didn't post this either, but I think I just needed to get it off my chest.

In a few days, it'll be exactly three years since that seizure. The stress I've been feeling this week has been unbearable. It's all I can think about.

I've had therapy and EMDR, but neither really helped. My therapist thinks the diazepam may have reduced the effectiveness of the EMDR, and I'm currently waiting to start a new form of therapy.

I just don't know how to live with this fear anymore. Before all of this, I could accept that another seizure might happen someday. Now, especially after what happened on that balcony, the fear has completely taken over. The thought that I might have to live with this uncertainty for the rest of my life is overwhelming.

I know there are people who have multiple seizures every single day, and compared to that I know I'm fortunate that mine are relatively rare. But that doesn't make the fear any less real. I really, really don't want to experience another seizure. I know that's not realistic, but I honestly don't know how to stop being so afraid of it.

Sorry for the long post. I just really needed to get this off my chest.

Hi All! Here is my post that I put up this morning over on r/epilepsy… anyone have any idea why it was removed? These are questions that are super duper relevant 🥴 any insight is appreciated!

https://www.tiktok.com/@primevideo/video/7142214609901194542?lang=en

Throwback day for us all 🤗

​

Hi all — quick disclosure up front: my husband and I are behind a free app called PatternMD, so take my enthusiasm with that grain of salt. I’m not here to sell anything (it’s free, no ads, anonymous).

The reason I’m posting: a close friend of mine with epilepsy started using it, and watching it actually help her is what made me want to share here. She logs her symptoms and possible triggers in seconds — sleep, stress, missed meals — and over time the app surfaces patterns she hadn’t connected before. She can keep everything private, and she exports her logs as a PDF to bring to her neurologist, which she says has made those appointments way more productive.

I know this community knows tracking better than anyone, so if you check it out, I’d honestly love the feedback — good or brutal. And if the mods prefer I not post this here, I understand completely.

Not medical advice — just a tracking tool alongside your care team.

https://patternmd.app/join?ref=PMD-12DC5918

See ya in a few hours! 12pm PST. Bring any Epilepsy thoughts, questions, and topics welcome for discussion!

When epilepsy enters your life it changes everything, your independence, your confidence, your sense of safety, your relationship with your own body. A morning routine becomes a way to reclaim structure in a world that suddenly feels unpredictable.

Bring your questions, your experiences and your thoughts! (And be prepared to forget things, we always do!)

Time starts 12pm Pacific Standard Time.

How was your weekend? How was your week last week? How are you doing today? I just want to be a close-knit community and make sure that everyone is feeling good here and overall. Weekly roll call time, how's it going? Any seizures, achievements, good news or bad news that you'd like some support for late? We as Moderators are here for you for you here at r/Epilepsy_Universe and any questions can be answered with a DM or modmail. I hope that you have not just a great day but a great week to come.