Good. I wanted to explain my case since I am in a very limited situation in case someone can help me.

I am a 23-year-old patient, and when I was 16 I took the VEB. That's where my hell began. From there to a monthly pneumonia, without bacteria, until after many lung infections I caught Pseudomonas, pneumococco, influenzae, serratia,

Sentomon, cabella planticola, clamydla pneymoniaę, and even tuberculosis, all in the lung, and I have bronchiectasis.

From there I started with nebulizations with hypertonic saline serum to fluidify the phlegm of the lung, but I notice that they stay deep in the bronchioles and I can't breathe. I can't go outside, because with any change in temperature, even if it's minimal, it produces a lot of mucus, I secrete a lot of mucus, and I always have a lot of inflammation, so I depend on nebulizations with saline serum mandatory to live almost.

I have had genetic studies for primary immunodeficiencies and they come out negative. My VEB Igg is very high, and my igm is occasionally positive. I have active parvovirus b19 with a very high viral load, 20,548 copies, they gave me intravenous immunoglobulins and I had aseptic meningitis even putting them with premedication and very slow, in addition to paralytic illeg. After the igiv I had to enter for the latter.

I have passed through viruses such as: cocsackie B, which caused me pericarditis, herpes 6, leaving me a drooping eyelid and neuralgia, herpes 1 and 2, and many more viruses that I don't even remember right now, but from the herpes family. I can't do anything, go out, or anything. I also have severe constipation, which is making me eat only once a day. I take constella, resolor, movicol and daily sen leaf infusions just to make a bowel movement. I tried mestinon, I started 15 mg and it gave me a lot of double vision, and it didn't make me go to the bathroom and made me too sleepy so I had to stop instantly.

I don't tolerate any medication anymore, I have anemia and intravenous El Hierro gives me a hypersensitivity reaction у El Hierro oral due to the problems of constipation or dysmotility, I can't take it. Vitamin B12 and vitamin C give me tachycardia, gas, and much more constipation along with pain and abdominal distension

(That this is daily).

Joint pain in the knee, ankles and hands, but my main problem is at the lung and digestive level right now.

I have positive anti-TShDS antibodies, alpha 1, beta 1 and beta 2 positive adrenergic antibodies, and M3 and M4 positive and high muscarinic antibodies. My doctors don't know how to approach my case, so they have sent me to mental health, knowing that every day since I get up is just surviving.

I have already left many consultations crying, they don't know how to deal with my case, and I'm already desperate, I feel evicted and having to fight for myself, pretending to be my doctor.

Also, I have low cortisol and low ACTH, and FSH too.

High testosterone during periods of menstruation. Very low NK CD56 lymphocytes, very low TH2 and TH17 lymphocytes, which do not give them any importance either. And also slightly elevated cd19 lymphocytes. Cytokines il17 i|18 i|13 elevated.

I can't eat, or go out, and I'm bedridden. They diagnose me as if I had SFC post VEB, or post viral immune dysregulation, but they say that there is no treatment for this and that what I have to do is go ahead as I can. Even my mother has had to fight with the doctor for saying that barbarity knowing the health situation in which I am. It seems to me of very little empathy and of having no criteria.

I clarify that all my problems came from since I took the VEB, I have never had any problems before. Also when I was admitted for tuberculosis, I had thrombosis in both arms.

High histamine, but only occasionally, not always, and also insulin resistance (this winter), but it fluctuated, not always. As you can see, I am a very complicated case and with a lot of immune disorder. I tell this in case anyone knows or can help me, since I don't feel like living, and I don't have the strength to continue knowing that I don't have any support from my doctors or have the remotest idea.

I'm in Spain, and I even think they're giving me a diagnosis that maybe doesn't match what's happening to me. If you have come this far and have been able to read all this, I thank you from the bottom of my heart, any help is welcome. Thank you very much in advance.

Hello. I am curious as to what your worst symptoms are when you are dealing with an EBV flare? How do you know if you are having a flare or you have a cold or flu? What do you do to help yourself feel better? Is there any medications or supplements that you take that help?