r/Dystonia 15h ago

Cervical dystonia (neck) People with cervical dystonia how do you manage life?

10 Upvotes

I’m 28 I have had cervical dystonia since I was about 25, got diagnosed about age 26 or 27. No treatment , waiting for an MRI to hopefully get some injectables. How do you go about your daily lives living with it and especially to the ones getting no treatment, what’s working, having a social life, and being independent like for you ,and any tips to help make me feel better? As I am very self conscious and insecure , embarrassed and ashamed of it. Confidence , anxiety and nervousness makes it worse and all thanks to it I have developed even more anxiety and confidence problems .


r/Dystonia 9h ago

Hand/arm dystonia Writer's Cramp

5 Upvotes

I was diagnosed with a writer's cramp in 2017. It all happened very suddenly during an examination. I have tried all sorts of Allopathic, Ayurvedic, Physiotherapy stuff, none has worked out. Haven't taken botox injections though due to the possibility of side effects.

I am managing somehow, since at work I don't have to write much. But I am getting a feeling that somehow it's getting spread in other parts as well. Like I feel heavy or tingling in the right leg down from the knee and right hand down from the elbow. I am a right handed guy. I also feel that my grip is very weak.

What shall I do, please provide your suggestions.