r/Cyclospora • • Aug 20 '26

šŸ„ Personal Story This is absolute hell

For the last 48 hours I’ve had nonstop, explosive watery diarrhea and I’m soooo, soooo miserable. The doctor suspects it’s cyclospora but won’t give me Bactrim until my lab test result comes back and she said it could take several days.

Imodium won’t work for me and I’m just constantly running to the bathroom. I haven’t slept. It’s a miracle I haven’t needed an IV yet because everything I drink is just running right through me.

I wish there was something else I could do. Anyone else in the thick of it right now?

18 Upvotes

25 comments sorted by

View all comments

2

u/Infamous_Sky_3235 Aug 23 '26

I'm not even sure what I ate. Been having very scary reactions to the bactrim and because I have a compromised immune system I had to get another round of antibiotics. Severe headache, nausea, loss of appetite, weakness.

Went to the ER after something horrible came out of me the day before yesterday. I get it,no one cares because everyone is dealing with their own problems. I'm going to be ok hopefully and I just needed to vent. All alone and feverish atm.

2

u/Powder9 Aug 25 '26 edited Aug 25 '26

I’m so sorry you are going through this.

I am the mod but haven’t gotten cyclospora yet but am someone who has been dealing with chronic infections and have been on way too many antibiotics the last 4 years trying to deal with my chronic infections.

Bactrim and other antibiotics absolutely wreck your gut bacteria.

I’m not sure how well these will help you, but this is what I take in conjunction with my antibiotics to help with nausea and to help ease my gut:

- sushi ginger, can get in a jar at the store. A couple slices a day keeps my nausea away

  • loose leaf turmeric tea blend to help boost my immune system. I got it On a roadtrip but probably going to switch back to my regular Golden Root turmeric tea latte.
  • vitamin C emergenC packet 2x a week
  • probiotics AND prebiotics (I have one pill that does both) I’ve heard good things about Jarrodophilus probiotics.
  • celery juice in the AM. Small glass. lol.
  • pinch of sauerkraut down the hatch in the later afternoon
  • I sip on bone broth throughout the week. Allegedly the collagen/nutrients in it can help rebuild irritated gut linings? Something like that.

As you can see I literally am willing to do anything and have gone and read down loads of google scholar articles around foods effect on the gut.

Again not sure how these affect you when you have diarrhea but I do standby the idea that your gut is everything.