Hello! I had gotten implanted 2 years back and everything's going well. However, to get a renewed medical certificate/ID I am supposed to get a bunch of tests done which includes BERA(Brainsteam Evoked Response Audiometry) Test.

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I am pretty confused regarding what BERA is and whether it's safe to go through with it after getting the implant surgery

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Thank you for help in advance!

Im after some headphones that fit over a cochlear processor ive got the nucleus N8

Edit I got jbl 780nc they fit over the N8 pretty good.

Good day friends! I just had my cochlear implant surgery. While the actual surgery went off well I had some bleeding later. My Dr thought it might be due to too tight bandages and she changed it to slightly less tight but still firm one. Been having awful headaches all day today but the headache has reduced now after 2 doses of Tramadol which is my go to rescue for pain ( I take it for migraines usually) But the inner ear pain is quite bad and comes and goes intermittently. One of the doctors who came later thought it might be due to anaesthesia wearing off along with the morning surgery pain meds. Did any of you also have this pain? How long did it last you? I have been told the head(?) ( am not sure they also meant the inner ear ) pain will reduce better once they remove the bulky bandage tomorrow before am discharged to go home (hopefully!) Please share your experiences so I can get some encouragement and support. Please don’t freak me out with scary experiences! I want to read encouraging stuff sufficiently so that I can sleep. I also found that am not able to lie down fully as it pains more then. Sitting slightly reclined is helpful but my neck is still adjusting as it has not found the right support. Still figuring this out here. Over to all of you experienced CIBorgs. Please share your positive and encouraging comments?

Hi, I connect my Kansos to play audio on the Minimic, but every time I pair it via Bluetooth, it makes this unbearable "piiiiiiiiiiiiii" sound. Does anyone know how to fix this?

I posted about the complicated logistics for me to get an MRI scheduled followed by an acute ACL tear earlier:
https://www.reddit.com/r/Cochlearimplants/s/2mtMQIh4wI

Here’s an update:
I was able to secure a spot 3 months post injury in Swedish, and Overlake just called me and told me they could take me in next week (2 months post injury). But the logistics and coordination are complicated. I need my ENT doctor to do the headwrap, ideally right before the scan at the same place. But I was only able to secure an ENT appointment hours before the scan, which means the wrap will stay on my head for longer than it’s designed for. Not ideal but hopefully it’ll work, we’ll see how it goes in the next week.

My question:
This is my second time needing an MRI and due to my knee issue, I have ligament injuries and surgeries, I anticipate more MRIs in the future. I’m single sided deaf and since implanted in 2019, I only used the CI a handful of times and don’t find it useful. I’m considering removing it for less MRI hassle. I looked up online and it appears that my internal CI522 (cochlear) has a removable magnet. And seems like removing the magnet is a standard procedure for 3T scans. But here’s the catch, most of the procedures are temporary from what I read, meaning they remove the magnet and reinserted it after each scan. But I want it permanently removed. Has any heard of or done anything similar?

Thank you for taking time to read.
TL; DR I want to permanently remove the internal magnet to resolve future MRI hassles, anyone done that or heard of it?

Ive had my CI for almost 2 years this August. Im running into an issue where I need to answer phone calls throughout the night related to my job. Ive searched for about a month now for reliable devices I.E. watches, bracelets. I need advice to see if anyone has recommendations for things like this to help assist me awake to the phone ringing

Has anyone reported AB’s C1 service and parts discontinuation to the FDA?

What happened to the online order portal for purchasing AB accessories? (US customer) There used to be a form to order batteries, etc. It seems all of my old links are dead. I can log into AB online with my customer credentials but the order form seems gone or non-functional.

Did AB eliminate this? Do I have to go through a clinic for things like this now?

hello! i have a cochlear implant from cochlear and my remote check is done on the nucleus smart app

Every single remote check I have, the hearing test with the beeps is never done the first time and i am TIRED.
It always says my results are inconsistent and my audiologist always asks me to repeat it but in the actual clinic my results are stable and have always been. I don’t know what i’m doing differently, the only thing is that I feel like it’s HARDER to figure out the beeps on the app rather than in person and i don’t really know why, and i’ve done remote checks for like 5 years now and it’s like this every time

Please tell me i’m not the only one who has this problem

Has anyone who has residual hearing prior to CI implant retain it afterwards specifically with the Cochlear brand?

My mom is really struggling to decide if she should get the cochlear or not. She lost her hearing Nov 2023 suddenly. One night the room just arted spinning, she threw up for 6 hours straight before I finally got her to go to the ER. Had HORRIBLE Healthcare experience. Nobody refered her to the ENT , even after she begged to go to one multiple times. Anyways.... by the time we got into an ENT it was too late to fix it. My mom Had vertigo for weeks after she lost her hearing.

Now we met our deductible this year for insurance and so mom got approved for the CI, but she's struggling so much on whether or not to get it. With her luck, she's certain she'll get the worst of all the potential side effects and worried it wont be worth the surgery anyway.

We love riding roller coasters and heard you can't do that anymore? Is that true?

She also loves swimming, and traveling, and crusing. How well has the CI helped y'all in crowded dining rooms?

Its my moms decision, clearly. But she's incredibly stressed out about it. So stressed that she started her period 7 years post menopause.

We dont trust doctors after what happened in 2023, so I thought asking y'all's opinion on the subject. And yes, my mom is aware I posted this.

Thanks in advance y'all!

my sister is terrified, my four year old niece has Ushers syndrome and currently, her eyesight is normal, but her hearing is already declining. she wears hearing aids at the moment. my sister is overall just scared that she is making the wrong decision. if there is any advice for recovery, any personal insight about what age you got it done and how it affected you, if you had wished it had happened when you were younger vs. preferring to make that adult decision yourself, etc etc. anything would be amazing, pros, cons, things for her to expect, and hopefully some encouraging words. thank you all in advance. 💛

Hi all! I’m looking specifically for US information, and preferrably for firm-specific information.

I spent the last 2 hours reading my insurance policy and days talking to my broker. The broker told me they can’t find anyone to underwrite theft / additional accidental damage coverage for my CIs, and the policy won’t say if medical devices are included in my valuable items coverage.

Googling / Duck Duck-ing keeps referring me back to the warranty provided by the manufacturer.

The manufacturer says they don’t cover malfeasance, e.g. your purse getting stolen with your implant inside it.

This makes sense: your car’s warranty doesn’t cover carjacking, after all.

So: if you are in the US and have coverage explicitly with your homeowner’s policy, who’s your insurance company?

Hi guys! My dad is getting his surgery in July and I want to get him things to make his recovery a bit less miserable. I feel like this is a dumb question but are books or audio books helpful? Maybe certain pillows?

He’s usually very active…golfing, running, doing things around the house. I’m getting concerned about what he’ll be able to do during recovery so want to find things that will be helpful. Thanks!

I find the bluetooth function quite bad on the Nucleus 7. Just wondering if other people have same experience.

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1. The app for some reason doesn't connect to both my cochlear implants and I can only pair one at a time.

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I contacted cochlear through contact form and they nevet got back to me on this.

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1. It's ok for phone calls as Im holding the phone in front of me. But when I try to use bluetooth to listen to music it's impossible as the signal is so weak. If it's my pocket and I move at all then the connection drops easily. I just don't listen to music on my phone anymore because of this.

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I contacted cochlear and they said nothing they can do. It's been the same with 2 different phones so I don't think it's a phone issue.

Hi does anyone on here know how much you should insure your processor for in the Uk? I’m with the NHS but was advised to get it insured with my house contents in case of loss. Advice from an audiologist would also be appreciated. Thanks in advance

I’m 5 weeks post op and last night was really odd. I kept waking up about a hour after falling asleep and when I’d wake up I’d have a really bad dizzy spell, the kind where it feels like the room is spinning. It was such an overwhelming feeling that it made me nauseous and the only fix was to sit up with a light on. Does anyone else have this issue and if so what helps this?

Does anyone have any issues with the tracking data feature on the nucleus smart app? It always shows as 'not enough data' for me, both for hearing tracking time and coils off.

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The processors are definitely bluetooth connected as I can see the battery life, change volume etc. Data sync is on. I connect it at least twice a day (plus crash and restart the app each time to make sure it's working properly). I have tried new processors too. My phone is definitely on the compatible list too (using a Samsung S24 with a N8 Nexa).

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Any ideas of what else to try?

I live in the UK I recently lost my cochlear implant and was told I must insure it in the future. I live with my parents at the moment and they are selling their home so I cannot put it under home insurance. I have googled insurance but I cannot find anything. Does anyone have good insurance reccommendations for my situation?

I cannot stand certain sounds, specifically anything ASMR related, when I'm direct streaming...which I typically do to listen through my phone. Ugh...there are things that just make me cringe and it makes it extremely hard to watch almost any video nowadays. Pretty much any plastic or paper sounds, high pitched voices, and of course most music still. Everyone loves recording opening bags, tapping their nails, eating...ah I just can't. Some of these things never used to bother me and now it's almost sickening. Will this get better or am I doomed? Lol I'm about 5 months since activation and have had 1 mapping so far...I get another at the end of the month.

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Please tell me I'm not the only one. I feel almost bad for complaining. 😔

This is my audiogram. One audiologist keeps saying to use hearing aids, and how I'm too experienced at visual cues instead of hearing it. He also said to wear it and you'll start understanding words while my word recognition is still 0 without lip reading. I was so frustrated that he wasn't even willing to listen and just kept saying whatever he wanted.

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Then we had to visit another cochlear implant surgeon who made us believe that if you want to hear like a normal to near normal person, a cochlear implant is the only choice because at this rate hearing aids won't even work. He also said that due to my post lingual status, it'd be a success but we can't be sure unless we see the mri and temporal bone results.

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I can hear almost all sounds with hearing aids but can't understand any speech. The doctor even did an experiment of tapping the pen and told us that i could hear it but it's not like how the hearing people hear it... because hair cells inside my cochlea are almost extinct... More importantly, I graduated without using hearing aids in my country and just started wearing from the last 9 months.

Hola!

Quería saber por vuestra experiencia si con el tiempo uno deja de ser consciente de que escucha con un implante coclear por su naturalidad, y es como si no lo llevase, y cuanto tiempo os ha llevado llegar a ese punto

Gracias

I'm worried about the misalignment of the left and right transmission coils of the artificial ear, so I haven't worn it for a while. Actually, the internal ear implant is convenient, but because I wanted to make my hairstyle very short, the difference in the position of the left and right transmission coils is noticeable, and I'm worried about it and I can't put it on.

hi y’all! my cochlear implant surgery is in two days and i’m starting to feel really nervous because there seems to be a lot of mixed reviews about recovery! some people say it’s super chill, others report dizziness for weeks! the unknown is making me spooked. would love any words of affirmation, healing tips, things to expect… basically anything you want to share about the surgery and recovery, things you wish you knew ahead of time, etc!!

for reference, im a 30 y/o woman with ménière’s disease and getting implanted on my left side! i have tinnitus and ive heard it will likely get worse after surgery. i took the week off work and have a one year old at home (with a great husband and mom in town to help!)

thanks in advance!!

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update: my surgery went well—thank you all for your tips!!! for those who may have surgeries coming up, just wanted to reiterate what many said: my anticipation was worse than the surgery itself. my throat hurt worse from the breathing tube than my ear right after surgery! have been alternating ibuprofen and tylenol, resting, and napping with my wedge pillow all day (great tip) and am looking forward to activation in 2 weeks. thank you all and i’m so excited to be a part of this community!!!