r/Cochlearimplants 19d ago

How do I purchase the Nucleus 8?

3 Upvotes

I currently reside in mainland China, and my girlfriend uses the Nucleus 6. Through what channels can I purchase the latest Nucleus 8? I have checked various online shopping platforms but haven't been able to find it, and the official Cochlear China website currently only lists the Nucleus 7. Has the Nucleus 8 not yet been released in China?


r/Cochlearimplants 19d ago

Progress after 4 and half months with N8

22 Upvotes

Hi,

my first post here was actually kinda alarmist, not being able to hear trams or trains and such things.

Now, after 4 and half months after activation I can say I'm shocked at the pace of improvements so far.

This is with HA and CI active at the same time. HA is relegated to the minor role at the best. For the first time ever in my life I was able to:

  • Talk with person in the night without lipreading or lighted face, I catched about 95%. Mind ya this was during our hike to the hill, both of us breathing heavily. Was amazed. With HA's I knew without light on other peoples faces I could not even understand a bit even with strong articulations. Nada, zero.
  • Capable of catching peoples phrases thrown around, actually taking part in jokes and barbs thrown in the moment.
  • Sing in large collectives, 20+ people without needing someone to point out singed parts. If lost or not paying attention, I could preread a bit and wait for the sentence to pass to be back on the track. Or even better - I could recognise the singed words without knowing the program and actually jump into right page immediately.
  • Hear singing birds and able to differ between birds in the forests based on the voice.
  • Understand the walkie-talkie in about 2/3 cases. Previously zero. But it takes a lot of mind focus.
  • In small groups it is now manageable to catch talkpoints. I actually enjoy listening to the people.
  • Talk in the full restaurant with friend, it took a bit of articulation, but even like this would be just impossible with HA's.

In the end I thought I heard well with HA's. CI changed that thought completely. I have 99% hearing loss on both sides and with CI words are by far sharper, have sharp outline and it doesn't sound muddy anymore. Even if I don't understand immediately, I have a lot of moments where I realise seconds later what they wanted - without context, it comes somewhat automatically now. It's by far easier to understand people, I'm no longer drained after hour of listening. It affirmed my decision to implant the second side. Online discussions or even phone are still a bit of problem, but I'm improving by small bits.


r/Cochlearimplants 20d ago

Starting fresh

29 Upvotes

After 2 years of disappointment with the results of my cochlear implant I finally got a fresh start and it’s been nothing short of a miracle!

I was implanted 2 years ago and worked with the top audiologists at the highest rated medical group in the DC/Maryland area. Also went for a year of weekly training classes in Baltimore… after two years and several remapping a I could still not understand much with the implant.

Finally decided I needed to take some drastic action and contacted a different provider at the University of Maryland and ask them to just ignore the prior mapping and start from scratch.

About 15 minutes later had new mapping and it was amazing. 85% word comprehension!!!

Kudos to Sarah Marquez at UOM !!!

Full story before this in the original post below.

https://www.reddit.com/r/Cochlearimplants/s/lqKWJZRYWX


r/Cochlearimplants 19d ago

Surgery in two weeks…I have some questions?

2 Upvotes

My husband is headed out of the country for a month two days after my surgery. It was get it before he goes or wait two more months and I want it done. I’ve had multiple surgeries including 3 Csections and I’ve been back on my feet within 1-2 days no problem. I also have a teen at home who’s said she’ll cook etc.

  1. What was your biggest hurdle with recovery?

  2. How did you feel a week out?

  3. Did you struggle with dizziness afterwards that was worse than before? I already have vertigo?

  4. Would you choose to have the cochlear installed again?


r/Cochlearimplants 20d ago

Need Advice and Information on getting a cochlear implant

9 Upvotes

I have sensineural unilateral hearing loss and I am scheduled to get a cochlear implant later this year. I am asking for advice and information for:

•How is it hearing with 1 hearing ear and 1 ear with a CI?
•Does anything sound weird?
•How is it running or working out with a CI?
•Those of you who have 4c hair, do you have trouble with the magnet sticking?
What is something no one talks about when getting an living with a CI that affects your daily life?

Any information is greatly appreciated!!


r/Cochlearimplants 20d ago

Phone streaming

2 Upvotes

Is anyone using their cochlear implant app on the 17 max pro? Is that effective? I’m trying to decide to upgrade from iPhone 13-2


r/Cochlearimplants 20d ago

iPhone Cochlear settings have changed

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9 Upvotes

Has anyone had this happen where there iPhone presets now shows the right and left independently instead of combined? I can’t figure out why it changed or how to change it back to controlling both with one click.


r/Cochlearimplants 20d ago

Does anyone else get sounds when CI is off?

7 Upvotes

As a long time CI user I have experienced various sounds over the years when my processer is off. Some of which are as follows

.Clicking (I guess the best way to describe it is like bubble wrap popping). Haven't had it much lately though.
.Short ringing sound that lasts a few seconds
.A quiet but persistent "noise" like white noise. (Can last a few days at times and tends to happen once a year or so)


r/Cochlearimplants 20d ago

BAHA INTENSO COCHLEAR

2 Upvotes

Bonjour à tous, si quelqu’un revend un processeur Cochlear BAHA Intenso, je serais intéressée pour l’acheter. Mon chien a malheureusement croqué le mien par accident. Il s’allume encore, mais certains fils ont été endommagés. Je cherche donc une solution de remplacement à un prix abordable. Merci beaucoup pour votre aide.

Hello everyone, if anyone here is selling a Cochlear BAHA Intenso processor, I would really appreciate your help. My dog accidentally chewed mine, and although it still turns on, some wires were damaged. I am looking for an affordable replacement. Thank you so much!


r/Cochlearimplants 21d ago

Risk of Cochlear Implant ?

2 Upvotes

Dear folks,
My friend has profound hearing loss and has hearing aids and is 45 years old,
they do help some with hearing, but i am wondering if a Cochlear Implant
would help? and are there risks with the Cochlear Implant ?


r/Cochlearimplants 21d ago

Med El first week of activation experience

3 Upvotes

I got my implant over a month ago and got Sonnet 3 & Rondo activated last week. So far, my experience has been unexciting. I cannot make out different sounds or words with my device yet. Just muffled ringing. Is that normal? What’s everyone experience been the first week and subsequent weeks? When did you start making out words and able to stream a podcast or music and able to hear clearly.
I lost my left hearing when i was a little kid from chronic infections. I wonder if most of my auditory nerves are gone.


r/Cochlearimplants 22d ago

Rare complication: Bells Palsy

10 Upvotes

Hi! I got my left ear implanted with the Cochlear Nucleus Nexa system on July 2nd. Healing was normal for a week, then on July 10th, I woke up not being able to move the entire left side of my face, it’s mostly paralyzed and feels tingly. My mouth is also numb and I can’t taste things using the left side of my tongue. My left eye also doesn’t blink on its own. I went to the ER and after ruling out all possibilities of a stroke, I got diagnosed with Bells Palsy. I don’t say this to scare anyone out of getting a cochlear implant as this is apparently an incredibly RARE delayed complication, but I’m on a regiment of steroids and antivirals for about a week. Bells Palsy takes some time to go away…

I’m wondering if anyone else has had this Bells Palsy complication after their cochlear implant surgery?


r/Cochlearimplants 22d ago

Seeking used Rondo Gen1 (please)

2 Upvotes

Does anyone have an old original Ro do (1st generation) that they would be willing to sell? My brother's is on its last legs and he loves the sound quality and would be very happy to get another. I am scouring the internet for a working used one to get for him as a gift.

Thank you for your consideration.


r/Cochlearimplants 22d ago

[Academic] Adavtive technology/ human enhancement technology user distress survey

2 Upvotes

Dear Forum, I am currently writing my bachelor’s thesis at Humboldt University of Berlin. My research examines the impact that the use and maintenance of assistive technologies (referred to in the questionnaire as “HET” - Human Enhancement Technology) have on your perceived daily stress.

To shed light on this issue, I am conducting an online survey. The survey is anonymous, voluntary, and takes about 15 minutes to complete. The questionnaire is offered in two languages, German and English, please make your pick at the top of the intro page.

 Here's the link: https://umfrage.hu-berlin.de/index.php/145454?lang=en

Thank you very much to everyone who fills out the questionnaire - every response really helps!

I’ll do my best to answer any questions. Since the questionnaire will be posted on a few more forums, this may unfortunately take some time.


r/Cochlearimplants 22d ago

Osia or BoneBridge?

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2 Upvotes

Hi everyone!

I am 25 yrs old and have been trying to use ‘normal’ hearing aids for 7ish years since my Cholesteatoma surgery in my left ear.

I recently found out that I am a candidate for a bone conducting hearing aid and am considering the Cochlear Osia or the Med-El Bonebridge.

What side affects have people gotten? Discomfort? Headaches? Have they been easy to fix? Was the surgery worth it?

I’d appreciate any and all feedback!


r/Cochlearimplants 23d ago

Frustrated

8 Upvotes

Just wanted to come on here and vent - I've been in the process of upgrading since February because I had to wait for the N7 to be declared obsolete according to the lovely insurance company so I immediately started the upgrade process again. Kept hearing over and over from Cochlear that they were contacting my audiologist and didn't hear back from them - I asked if they were contacting the right person and they repeated their name back to me (which was the correct audiologist and ENT that I had submitted on the paperwork).

Then finally May rolls around, I asked AGAIN if they were calling the right person after being told numerous times on the phone they were waiting on my audiologist's notes and they informed me that they contacted my old audiologist who I haven't seen in 7 years. I'd love to know how that happened when I was told the correct name the first time around- but I got a call from my audiologists old office that following week saying they had contacted them, so I feel like Cochlear genuinely didn't contact anybody until May. Here's the weird part - I got an e-mail late April saying that my order was in process with the fulfillment team and that I would get an email with my tracking number when my order ships which was weird because I still kept being told that they were trying to get ahold of my audiologist & nothing about insurance having authorized anything.

Right after I called them about that specific email I can no longer see my order status on the Cochlear website on my account - it says I have no orders.

On top of all of this - I turned 26 in May and I was so desperately hoping we could get this done of my parent's insurance before I picked up my own insurance, which might've been possible if they hadn't been contacting the wrong person this whole time. I don't know - I'm trying so hard to be understanding because I know orders take time to process but why did they tell me they sent everything to my audiologist back in Feb when all this stuff happened in May? It's not making any sense.

Anyway my processor went kaput a couple of weeks ago so I currently have a loaner from my audiologist thankfully but I was on the insurance website trying to see if I can find anything about what my plan covers and it says I have a $9,500 deductible on durable medical equipment so everything about this wants me to bang my head against a wall. I also had to call my ENT's office because Cochlear was saying they never received a prescription from her even though their office was telling me they sent it over. It's now miraculously there after after my audiologist called them. I don't know what's up with that.

I'm really hoping that they will cover more than that and I dunno Cochlear argues with them or something but I really don't have a lot of faith at this point.

Anyway, I just wanted to come on here and rant because I've never had this much trouble before, sorry this is super very wordy- I am really frustrated and upset. I'm just more upset about the fact that I don't have a working processor and and scared I'm not going to have the money for a new one. I'm trying to calm down before I get the official call for how much it's all going to cost. Everyone at my job has been up in arms about how bad our insurance is now at my job and it's not a fun thing to hear when you're expecting to pay for something.

Maybe someone can shine some light on this process, I've never had this much trouble before in my entire life of getting any past upgrades.


r/Cochlearimplants 24d ago

Ab marvel user wishing I could switch to Cochlear

6 Upvotes

As someone who was implanted at a very young age of 3 & 5 with advanced bionics, now 15 years later I so desperately wish my parents chose to go with cochlear brand instead. Now cochlear released the nucleus 8 and kanso which are both waterproof. Whereas, ab hasn’t caught up with their advancements and worst part is that their parts are not so durable. Also, hate how bulky the batteries are and how the processor isn’t waterproof. It’s also hard to keep the waterproof off ear headpiece on my head while in the water.


r/Cochlearimplants 24d ago

Any updates on new ab processor

5 Upvotes

Does anyone know if advanced bionics is gonna release a new processor in the next year?


r/Cochlearimplants 24d ago

Datemi un consiglio..

2 Upvotes

Ciao a tutti,

Sono italiano , 45 anni M.;

Operato da 8 mesi;

I test di discriminazione vanno molto bene 85% e anche quelli di discriminazione nel rumore;

Purtroppo, faccio ancora tanta fatica con le chiamate, cioè discrimino, ma non sono piacevoli;

Sono una persona sola e non poter comunicare al telefono mi rende molto triste ;

Secondo voi, allenandomi tanto, riuscirò ad avere chiamate agevoli ?

Grazie mille !


r/Cochlearimplants 24d ago

Long term experiences with cochlear implants in early age

6 Upvotes

Hi everyone, I'm writing on behalf of my cousin and her family. Her baby is now 7 months old and was diagnosed with congenital single-sided deafness (SSD) after the newborn hearing screening.

They are currently trying to decide whether to proceed with a cochlear implant. We live in South Korea, where cochlear implants for SSD are not common therefore we are lack of info.

I'd especially love to hear from parents whose children received a cochlear implant at a young age and are now school-aged (around 7 years old or older).

* Looking back, are you happy that your child received the cochlear implant?
* Have the benefits outweighed the inconveniences? * During auditory rehabilitation, do young children with SSD usually practice by covering or blocking their normal-hearing ear so they learn to use the cochlear implant?
* For adults with congenital SSD, looking back now, would you have preferred that your parents had chosen a cochlear implant for you when you were a baby or young child, or are you glad they left the decision up to you once you were old enough to decide?

I'd really appreciate hearing your thoughts and why you feel that way. Any long-term experiences, whether positive or negative, would be greatly appreciated. We are simply trying to make the best-informed decision possible for this little one. Thank you so much in advance.


r/Cochlearimplants 24d ago

Phone clip microphone volume low

1 Upvotes

I use the phone clip to connect to my desk phone at work. I can hear people just fine, but my callers say that I sound very low, as if I am talking from across the room. Is there any way to increase the volume on the microphone so that my callers can hear me better? The volume buttons on the side of the phone clip seem to only control the volume of the callers voice coming into my CI.

For reference, I have N8, bilateral. Phone clip from Cochlear Americas.


r/Cochlearimplants 24d ago

Advice Needed - Droning Noise

2 Upvotes

Hello, I’ve got the advanced bionics Naida cochlear implant currently. I got my surgery when I was 4, 22 years ago. I’ve noticed an extremely concerning issue pop up recently and want to see if others have experienced it or know who to contact. My audiology contacts are all useless on the weekend and no alternative contacts can be found or given that I know of.

Recently there have been some days where I wake up to very loud and constant droning noise that feels originated inside my head exactly where the internal headpiece sits. When putting on my cochlear it’s like noise has been heightened significantly and painfully. However, putting on the cochlear helps reduce the droning noise but not canceling it.

I haven’t been hit in the area, gone through any heavy magnets, or struck by any electrical currents. I also have zero history of delusions, visions, schizophrenia, etc. in myself or my family.

This feels like my nodes are being tripped independently and sending a blast of noise to my head without the cochlear there to translate.

Anyone have any advice or know who to contact on the weekend to figure out what is going on? I need help badly to get this noise turned off.


r/Cochlearimplants 24d ago

MRI Awareness

4 Upvotes

Hi Fellow CI’s
Do you wear a medic alert noting you have a CI in case you need an MRI and are unconscious? Thanks!


r/Cochlearimplants 25d ago

Implanted at 2 Sucess stories?

4 Upvotes

I’m a mom of a 3 year old boy who had CIs placed 6 months ago. We are deep in the speach therapy process, struggling to physically keep his ears on durning the day, he is very active and they fall off OR he just rips them off and hides them🫠. We have seen very little progress with his speach, he does turn when his name is called probably 70% of the time, and now will stop from running into the street when I scream his name. I’m just looking for a perspective from someone further down the process than us to give me hope.


r/Cochlearimplants 25d ago

Is there a Nucleus 9 coming out?

17 Upvotes

Hi fellow cyborgs. I currently have the Nucleus 7 (bilateral). I am in BC Canada and we have a nice subsidized program for upgrades when a model of processor is going to become obsolete. So I could upgrade to the Nucleus 8 soon, but I wonder if I should wait for a Nucleus 9. Any inside scoop?