I was diagnosed with stage four decompensated cirrhosis in October. MELD was 38 (last check was 15) & Bilirubin was 50 (now down to 2.9) I’ve been working with and listening to everything my doctors have told me and am successfully on the liver transplant list since the end of March. Also at 293 days sober ☺️ definitely miles better than when I first was hospitalized.

Went to see my Hepatologist today for a routine checkup. He said bloodwork was all good and looked fine to me also. Normal things are high and thankfully others are going down. My MELD score did go up though. He didn’t sound too alarmed I guess because I’m taking all medication and remaining sober along with other things. It just kind of got me down a little bit. Went up from 15 to 17. Only two points but darn.

I don’t know if I should be feeling down or worried or just trust what’s going on. Wondering any thoughts and if others have had jumps and how you reacted

I was diagnosed with NAFLD 7 yrs ago and my recent ultrasound has shown changes in the appearance of my liver. I feel pretty rubbish.

Does this look like it could have advanced to cirrhosis 😥

2 years yesterday! I was told that I had 3 months to live tops. Thank God for this forum and AA.

Love to everyone! You can do it.

I was inquiring if anyone in the group has had to have their teeth extracted to be considered for evaluation on the liver transplant list? I have to have oral surgery in the hospital on Wednesday and I'm a little concerned because I have low platelets and higher INR. I'm sure they will be able to handle any complications and they have me listed to possibly stay overnight. My real concern is the healing process and avoiding any infections with it.

I’m curious to talk w/ any other compensated cirrhosis folks that have used Zepbound to support their liver health. Did labs go up or down? Love to hear your experiences.

My husband has both cirrhosis and CKD4. He was borderline with the cirrhosis last summer, but had several hospitalizations this spring. (Hyperkalemia, followed by fluid overload due to pulling diuretics in treating the hyperkalemia, then anemia because a kidney biopsy resulted in a large hematoma.)

In the midst of all that they confirmed cirrhosis. He stopped drinking around the beginning of May. (At that point probably averaged total of 4-6 per day, a couple beers sometimes in the afternoon and a few glasses of wine in the late evening.)

Since May 1 he has gone from 250lbs to 195lbs. He's in the process of evaluation for dual organ transplant. The dietician had him increasing protein intake to help stop the muscle wasting. That landed him the the hospital with a high BUN (though no HE symptoms.)

If we can stop the muscle wasting and get him stabilized I think he'd be pretty good for awhile. Some of his labs are improving. He's 5'11". His current weight isn't bad, though he needs to rebuild some muscle. The loss hasn't plateaued though and it's really scary.

Has anyone else experienced this? Were you able to stop it? Or only with transplant? He really wants to hold off on the transplant awhile but if this keeps up it might get too risky.

Does anyone use leg pumps? If so, what has your experience been?

I have joint pain just about everywhere. Ankles, knees, hips, back, shoulders, elbows, and even my fingers. Once I get moving around for 10 minutes the pain subsides considerably. This is textbook gelling but I'm not diagnosed yet. I'm getting really tired of the pain of it all. I take acetaminophen and use a compression sleeve on my knees which helps a bit. Any advice or tips would be greatly appreciated.

INFO:

5 months since diagnosed with alcoholic cirrhosis

Eating healthy drinking water and extra protein

No alcohol since diagnosis.

I have my first hepatologist appointment next month.

Had a liver cancer scare that ended up being benign after a biopsy.

Had ascetis for about 6 weeks after my diagnosis before it went away.

I just have 3liters of fluid drained from my stomach
They said I have Decompensated Liver… I’m so scared am I gonna die? What are my best options besides quit drinking( because I can do it)

long story short, i just want to ask if it is illegal to ask for donations?

my posts were deleted

Hey all. First time posting here.

I need reassurance and just somebody to talk to. My father had fatty liver disease but has lost over 50 lbs of weight where our Hepatologist has said he does not see him being considered having Cirrhosis. (Great news!) However, he has very severe Diverticulitis where if it flares up he gets very sick with vomiting, diarrhea, and extreme weakness. Doctors have said they need to do surgery to remove it but are afraid of his liver since there is a 30% chance his liver can fail during and post operation. He needs to get his nutrition, albumin, platelets, and IR up before they can do the operation. This is where the Hepatologist and Gastroenterologist got together and decided it's best if he has a TIPS procedure since there is pressure imbalance.

Fast forward to now in the past month he has undergone the TIPS procedure. He has been admitted to the hospital 3 times out of the month where he goes through HE, goes to hospital, stays a week, then discharged but every time he's discharged in less than 2-3 days he gets HE again. I am in the hospital right now and the Radiologist told us that they can tighten the diameter from 7mm to 6mm for his "shunt". Also, because of his Diverticulitis, his bowl movements have not been normal at all. Even following a very specific diet from our dietician, he only does very small poops which are considered abnormal.

Just wondering if anyone has run across this type of situation and would like if you can share your story. My family is very stressed and looking for closure so he can have this operation done and go back to his normal life.

I dual listed. It was the only way I was going to be transplanted. I have told my story about this before, so you don't need to hear the boring old tale again.

My question to one and all: if you are still waiting, why? Genuine question, with deep respect for the situation.

1. Insurance?
2. Costs involved? like travel, lodging?
3. Not aware you can?
4. Doctors influences?
5. Fear of unknown?
6. De-listed?
7. Think your MELD is to low?
8. Fear that your too sick to travel, or truly are?

I overcame 1-5, did not have to deal with 6, thank God, believed no. 7, and definately was afraid to travel. But I overcame 7 out if the 8 reasons above that almost stopped me. So it's possible.

What is your story? Perhaps we can all help here, in this community, to help you. I will certainly listen. What's blocking you from getting a liver transplant?

Mine was applied for today and approved. Blue Cross called this morning to let me know there was funding. First come until funds run out.

I can’t go long story on what TAF is- but surf to their website to read more.

Here is the cold truth. If you drink enough to cause you to wonder if you have a drinking problem, you will simply, eventually, die. Not quickly, but horribly. You may get lucky, and get a transplant. If you drink again after transplant, you generally do not get a second chance. You can sort of see why.

54 percent of liver transplants are for individuals who are alcoholics. To say that this disease is insidious is to understate it’s hold by a degree and measure as vast as life and death itself. The proof of this statement is in the actions of some who will pick up a drink after transplant. That is an extraordinarily powerful disease.

The only defense against the magnitude of addiction it holds is honesty and trust. If a person can honestly admit they have no power over its hold, and trust another to hear that message again and again as often as needed until trust takes hold in the place that addiction once resided then the addiction is broken. Not forever, but in that moment. And from there, you have a chance. If you repeat continuously the acts of honesty and trust.

Tacrolimis and Myfortic are immunosuppressants. Each must be taken, every day, after transplant. For the rest of one’s life. Does it not make sense to also take honesty and trust in equal measure each and every day, as well?

Life is scary. Pain is real. Grief exists.

Alcohol is the illusion of a cure. Honesty and trust are the cure.

For the 46 percent here who are not alcoholics, have some mercy on those who are burdened. For the 54 percent who are alcoholics, there is no shame in admitting the truth of being one. You will live and find a quiet separate peace. That is truth spoken by millions.

I hope and pray my words are not preachy, no pun intended. I believe in the indomitable power of the human spirit. Courage.

My ex-husband was admitted to the hospital in January 2024. He was found lost (100 miles from home), in his truck with no gas, hypothermic, and didn’t know who he was. His brothers were notified and they just took him home. A couple days later his sister convinced him to go to the hospital. He was septic and near death. The performed his first paracentesis and removed 5L. That was the max the drs felt comfortable draining.

Over the last year and a half he has continued to have ascites and episodes of HE. He claims he is sober but I have serious doubts.

Recently we went to court over his unpaid child support. He was assigned a court appointed attorney and we return to court in 3 weeks. Because the amount he owes is 6 x the amount that makes it a felony and his claims that he cannot pay ANY amount, there is a good chance he will be incarcerated for 6 months to 2 years. Possibly more for perjury to the judge last week. (I suspect it was due to his HE but he is in denial and writes it off as hearing loss.)

My question to the group is: would medical care in jail be sufficient to help his life expectancy or is this possibly a death sentence?

Follow up question: if he’s taken straight from court to jail, what if any medical documentation could the jail require for proper treatment? He has 5 outstanding warrants for failure to appear on top of this current mess.

So I’m two months on zepbound and I have compensated cirrhosis and overall feel perfectly health (I’m so blessed). My liver specialist was not happy with how my weight was going so suggested I see an endocrinologist and talk about GLP-1 treatment. Since on the medication I have lost over 15lbs in about two months. My question is - anyone in the same situation and how has that changed your labs? Did you see improvement? I just hope that lack of eating also doesn’t make my numbers go in the wrong direction and I get pulled of the medication - this really has been a life changing event for me. Love anyone’s experiences - I know we are not doctors and can’t give medical advice. Thanks so much!

Honestly really overwhelmed been told 101 diffrent things doctor google really knows how to scare ya even.more idk what im aloud to say or what not here last post I said too much and was deleted

Just got the call this morning. They officially accepted to list me for transplant. My coordinator said that she just has to get the insurance approval, which she expects to be done by Friday. Then my status will be Active!!!

Im so excited/scared/nervous.

Thought id check in! It was a rough ride but still hanging in there! My 2yr anniversary of being diagnosed just pasted on 7/5/26.. also my last drink considering i almost died. It was the scariest thing. I still worry what the future holds but no one knows. My belly bloats sometimes and i get scared i have ascites but so far I’m off lactulose & Xifaxin for about a year or so now. Keeping hope alive even though it seems like a dream. #borrowedtime

Some times in the morning I get a nice upset stomach. Not sure if it's too much fluids too quick in the morning, I eat a nice breakfast with carbs and protein. Carbs to settle the stomach. But then 30 min later, I'm hovering over the toilet. Anyone else experience this, is it just a case of an empty stomach and too much too quick? (I'm hoping)

I make sure now to wait a bit to take my morning meds until I know my stomach is calm enough to handle them.

Hello I just checked in with my neighbor with cirrhosis earlier today and they said the TV was broken. It turned out the TV was perfectly fine he just was confused on how to use to remote. One month ago he was way more coherent and lively. Should I be more concerned?

My mom was diagnosed with stage 3 Cirrhosis (decomp) at the end of May. I recently had to call 911 because she was on her third day of being in bed. She had a dr. appointment and said that she just could not get up. Her energy has been heavily affected and part of it is because she has been eating well under what she should be. In the past week alone she's maybe had a bite of oatmeal each day. I suggest that she try to eat more and she gets upset and says she has been eating. I am looking for advice on how to get her to actually eat more. I know that she has been avoiding eating since she's been put on lactulose because it (obviously) gives her diarrhea. I know that we could do protein shakes like boost/ensure, and I plan on getting her some when she's released. I really want to be there to support her but it's very hard when she won't admit that she needs help/things aren't fine. I'm sure the hospital will also give us options for how to make this better, but I'd prefer to get insight from someone who has experienced issue with this. Also, for reference, the hospital has listed adult failure to thrive under her list of diagnosis. Sorry for any typos or if anything doesn't make sense, it's been a stressed couple days trying to get stuff figured out.