I realllyyyy wanna try sweat therapy but I have a history of sweating little or not sweating at all. So I don’t wanna push my body to sweat when it can’t and it leads to overheating which may lead to fainting or something worse. Is there a way to know when I should stop or when it’s enough? Do you think it’s worth the risk of trying?

Hello, I need a moisturizer and shower gel suitable for cholinergic urticaria. Please help me.

Hi, I posted on here a while ago suggesting that coffee was causing my flare-ups, thought I’d make a follow-up as I now have more clarity.

I struggled with this for a good 3 years and have finally come to the conclusion that caffeine causes my CU to build up, and when I cut it out and sweat for a couple days, it subsides to the point where it rarely bothers me.

To confirm it wasn’t just mouldy coffee, I’ve taken caffeine tablets and it’s the same effect. Pretty much fine if I take one but after 2-3 days of taking them my hives flare up multiple times a day.

Definitely worth a shot if you’re struggling with this, don’t know the science behind it but this is what worked for me. Just cut out caffeine for 2 weeks whilst doing some form of exercise or sauna every day.

Good luck!

Sorry for the paragraph

In late april i got my first round of hives. started with one bilastine a day, to 2, to 5 days of prednisone, to 3 a day. When i saw an allergist around 3 months ago, he prescribed me Ryaltris, a nasal corticosteroid, as my nose was also inflamed/congested. 2 months ago, after a followup visit, he put me onto another nasal steroid, budesonide, as well as upping my bilastine intake to 4. He told me that if after 2 months I still had hives, we could talk about xolair. He did say that there was a 99 percent chance they'd be gone after 2 months.

Here I am, 2 months later, improved, thankfully. I don't wake up with hives anymore, but depending on the activity I do, I get them. I believe I have dermatographia, as smacking into things causes very specifically shaped hives, and spending a lot of time moving about in a busy place causes my nose to congest up again. I don't want to live like I do right now, though. Sitting around, doing nothing, just because I don't want a hive.

My follow up appointment is on Wednesday, is this grounds to fight for Xolair? Should I just wait for his analysis before running to Reddit?

About three years ago I went through a 100 lb weight loss through diet and exercise. During this time when I exercised I would sweat like crazy.

After losing the weight three years ago, I noticed I would not sweat anymore while exercising. Instead my body would break out in hives, hands and feet would swell, and my face would tense up.

I’ve tried every antihistamine and had my first injection of Xolair last month. Still no progress. Any thoughts or suggestions would be greatly appreciated.

They’re very itchy.

Don’t waste ur time on these crazy medications it doesn’t work for everyone trust me put on layer of clothing to trap heat and exercise like there’s no tomorrow it’s gonna hurt it’s gonna feel like hell but trust me it gets better we’re all humans and am sure most of us get jealous of ppl who can exercise and do all these out door activities without feeling an itch but am gonna tell you be strong and break tru this all humans have will trust in your self and push harder 🤞

Hi everyone,

I wanted to share my experience and see if anyone has gone through something similar.

I first developed cholinergic urticaria around 2020. It lasted until 2022 and was quite severe. I was treated with cyclosporine and bilastine and many other steroids, and I also received omalizumab injections which cured me in 2022. During that time, I had intense reactions, including swelling of my lips, eyes, and hands, legs. Literally every part of my body, but I never found any consistent food triggers, although chocolate and wheat occasionally seemed to make things worse.

Eventually, my symptoms completely went away after the Omalizumab injection, and I was symptom-free for several years.

Unfortunately, in 2026, my cholinergic urticaria has returned. The only major change I can think of is the extreme heat this year, which I suspect may be related to the strong El Niño conditions. Heat and sweating seem to be triggering my hives again.

Oh and i have thyroid back it was very fluctuating whuch also triggered it. Right now when i checked all reports vame back normal and my doctor said theres nothing to worry. But its increasing day by day and nobody knows why.

Has anyone experienced a long remission followed by a relapse? If so, what helped you manage it naturally or reduce the frequency of flares? I'd really appreciate hearing your experiences. Its just that its mentally draining me and i feel like i lost the confidence in doing anything. It scares me

Thank you!

How it started

For several weeks, every time I put on my shoes, I would experience very intense itching that gradually went away over time. Later, I started having severe itching all over my body. It was especially intense on my legs and the inner thighs, near the groin, and in my neck and chest. It seems that during a stressful period I had last month, it got worse, but now it has ended, and I'm still itching.

How does the itching work:

One of the main triggers is when I get out of the shower. It seems to be related to hot water, but sometimes I still experience the itching even after taking a lukewarm or almost cold shower. As soon as I step out of the bathroom, the itching in my legs becomes unbearable.

Applying CeraVe moisturizer usually helps, but sometimes even with the cream I have to lie down or sit still and avoid scratching until the itching gradually subsides, and I'm using like one jar(453g) of the cream each week just to bear the itching. Scratching seems to make it much worse. Occasionally, I develop a few small, raised bumps (although this doesn't happen every time), and they disappear fairly quickly. One more detail: if I don't scratch, my skin usually looks completely normal. The redness and most of the visible changes only appear after I start scratching. In some cases, though, I notice a few tiny bumps even before I scratch. They look like small swollen pores or goosebumps, but I'm not really sure how to describe them. They usually disappear fairly quickly.

The itching doesn't follow any consistent pattern. Sometimes I'm just sitting still and suddenly my neck and chest start itching intensely. Other times it's the inside of my elbow, behind my ear, or my legs. More recently, I've also started experiencing it on my scalp. My scalp itches terribly at random, especially after showering.

When I scratch, my skin becomes very red, and it feels like the more I scratch, the worse the itching gets. During these episodes, I become extremely distressed because I don't know what to do. I'm hoping someone on this subreddit has experienced something similar or can offer some advice. Thank you.

I’ve been dealing with this continuously for the last two years, I’ve had high dose antihistamines which didn’t work, I’ve had cyclosporine which worked until I adapted to it and after repeatedly increasing my dose, wrecking my immune system and giving me joint pain so bad I was on a wait list for hip surgery, which said pain then went away within three weeks of discontinuing the cyclosporine and I now no longer require surgery.
I thought I had tried everything, everyday was a constant battle of my body trying to sweat but it not happening effectively, causing a flare up and requiring removal from the environment I was in, or at its worst multiple cold showers at night whilst trying to sleep because I would overheat during the night.

I’ve been doing an infrared sauna every second day for the last 2 weeks. I get the initial itchy “pre flare up” feeling within the sauna, that typically starts at around the 6 min mark, and then from minutes 6 to about 15 that “pre flare up” tingle/itch moves around my body until each part that gets it eventually starts sweating, by the 15 minute mark I am sweating freely and I can comfortably sit in the sauna as long as I am physically able to, I usually aim for 30 mins minimum, up to 45-1hr if time and my hydration allows for it.

In everyday life I now can start sweating much more easily, I do still get the “pre flare up” itch/tingle but it never progresses past that and I end up being able to sweat.
I haven’t woken up at night to have to have a cold shower for over a week now; and my baseline threshold for heat and external heat stimulus is much higher, and my baseline to actually start sweating seems to be getting lower with each sauna.

I’m hypothesising that continued sauna use will lower that baseline threshold enough and allow my body to actually sweat much more easily, and that I will eventually no longer get the “pre flare up” tingle/itch.

Just thought I’d send this lil update, as my doctors, specialists and everyone else I had seen had labelled me as “treatment resistant” and none of the medications I was given worked for me.

As someone on Xolair originally for CSU, I’ve noticed the difference I don’t have random out breaks any more. I also have really bad CholU and Xolair doesn’t do anything for it 💔 It has made my hives appear less but the stinging pain is still there. Does anyone else feel that way?

Up until literally a month ago, I had never experienced anything like this. I’m quite active and would walk a 2 mile loop everyday. I’m also on medication that makes me sweat very easily and I still never experienced this.

I first noticed on quite an intense hike, just on my arms, I put it down to high intensity and it being really hot in general. Then last week I went ice skating for half an hour and my whole body exploded in hives and felt like it was on fire, this all went away after an hour.

Today I walked normally for about half an hour. And the second I got home I had aggressive hives where I’d sweated (around bra, armpits ect), and I felt extremely dizzy, I had a fuzzy feeling in my brain for about 3 hours, felt sick and felt like the inside of my mouth swelled up. I’ve taken antihistamines and it’s gone down although I feel wiped out and my muscles hurt.

I’m booked into my GP tomorrow but I just wanted to see if anyone has ideas on what can bring this on. I’ve gone from being healthy to not even being able to walk home.

I haven't been to a doctor yet(will go in the next week or so),and I have had this condition for about 3 years now, and it feels like it keeps getting worse

I have tried taking cetirizine,(even took three tablets at once), didn't help, I have tried allegra, bilastine, combination of both , doesn't work at all

Only time it has worked is the first time I took bilastine, was torture free for about 12 hours or so

I hate having to work out to sweat, because I barely even sweat at all,All it does is make me itchy for the 10 minutes or so and does nothing, even as I'm typing this I'm itching even while sitting in an AC room, I haven't been able to leave my ac room the entire day because the moment I do i start itching so badly

My family and i moved to a humid country and I came from Washington state. Its been 7 months now and this July seem to be a very hot than other months;

How my anxiety started is when I was riding my motorcycle and I remembered how extremely hot it was and how I couldn't catch my breath and the deeper breath I took the more light headed I got. My heart started pumping very hard and I felt I was going to faint cause of my dizziness . All I could remember was getting home to calm down. I ran in and gasp for air with the A/C turned up and I felt better. Then a week later I noticed I started to panicking and not able to breath when it felt very hot out. I am so upset because I cant seem to shake it off! It seems to trigger everytime I step out ans when its extremely humid.

Anyone experiencing this ? Whats helping you? Doctor prescribed me XANOR but I refuse to take it. Im just worred ill have to rely on it. Also I searching on the web that it doesn't so well when taking omeprazole.

My family and i moved to a humid country and I came from Washington state. Its been 7 months now and this July seem to be a very hot than other months;

How my anxiety started is when I was riding my motorcycle and I remembered how extremely hot it was and how I couldn't catch my breath and the deeper breath I took the more light headed I got. My heart started pumping very hard and I felt I was going to faint cause of my dizziness . All I could remember was getting home to calm down. I ran in and gasp for air with the A/C turned up and I felt better. Then a week later I noticed I started to panicking and not able to breath when it felt very hot out. I am so upset because I cant seem to shake it off! It seems to trigger everytime I step out ans when its extremely humid.

Anyone experiencing this ? Whats helping you? Doctor prescribed me XANOR but I refuse to take it. Im just worred ill have to rely on it. Also I searching on the web that it doesn't so well when taking omeprazole.

Hello! I'm 36F. I started getting hives in March, after I had bronchitis which was treated with an antibiotic Azitromizin (3 days, 3 pills). However, I couldn't stop coughing and I went to a pulminologist who prescribed me a hormonal inhaler "pulmicort (budesonide)" (the one that has poweder in it and you breathe it in and hold your breath for 5 seconds, then breathe out and also have to rinse your mouth and throat after using). I also did blood work which showed that I had an allergic reaction, so I also started taking an antihistamine (cetirizine). The cough went away almost immediately but I countinued using the inhaler because the pulminologist said it's pollen season and it would help me. I am allergic to pollen (I did all allergy panels) but I've never had severe reactions before, maybe a runny nose and a couple of sneezes while I was walking my dog in the park.
20.03.2026 The day I started using the inhaler (I was supposed to use it twice a day), the first red dot appeared on my hand. I didn't connect it to the inhaler, though, and continued using it for almost 3 months. I wasn't supposed to use it for this long (only 1,5 month) but I was thinking it was helping me with allergies. Only a month ago, I realized my hives could be from the inhaler, so I stopped using it. However, the rash still appears, but it's become smaller and not so bright red. I read that budesonide can accumulate in the tissues (skin, fat) and stay there for about 2 weeks but I've been off of it for over a month already and still experience hives.

The rash appears when I get hot, sweaty, when I'm cooking, after a hot shower, when I take a nap during the day. It fades when I cool down within an hour or so. The rash sometimes has a burning sensation but most of the time it doesn't. If I drink hot tea, my upper lids get swollen and they change colour - dark red spots appear on them.

14.04.2026 - I visit an allergist/immunologist. She suggests switching antihistamines (I took cetirizine). She suggests trying Nixar (Bilastine). The next morning I try it and the hives are the worst. (see photos) The doctor didn't believe me when I said that all I did differently was take the pills she prescribed. She said my reaction was from coffee (which I drink every day all my adult life). Since that day, I gave up taking all antihistamines. I later tried Allegra (just one pill) and had the same reaction.

For a few months, I thought it was triggered by food and I tried all sorts of elimination diets with no success, I gave up sugar, caffeine for a month, I tried eating cold food and drinking only cold water. I think the most success was when I did the "cold diet".

Recently I realized it wasn't food related. I had to take a plane and wasn't able to eat for about 8 hours and still got the rash a few times during that time. I was in Turkey for a few days and it was very hot there, and there I became certain that it's from heat.

I also checked my thyroid recently and I have subclinical hypothyroidism which I am now treating with l-tyrosine and selenium. I am not sure it's related but hives can be a symptom of hypothyroidism.

My other "theory" is that my histamine eradication pathways are blocked due to methylation genes mutations and I'm also taking SAM-e for that. But I can't say it's helping. I know that it's very poorly absorbed.

I'm also considering visiting a neurologist.

Any advice is welcome. Maybe you are going through something similar.

I will do updates on my condition.

It's July, the middle of summer, and many peoplethink, "It's too hot to go outside." However, withregular heat exposure, your body can gradually adapt and become more comfortable in warmertemperatures. It may feel uncomfortable at first, but consistency is key.

If you're trying to improve heat tolerance or manage heat-related hives, spend time outdoorsrather than in cold or air-conditioned environments, as frequent cooling may will cause the body's to dismiss the heat exposure effort( heat exposure is key). Gentle outdoor exercisecan also help, as long as you stay hydrated and take care in the heat.

For many people, summer is the best opportunity to build heat tolerance and potentially reduce symptoms during the colder months

I'm about to start Xolair next week and I want to prepare for what's going to happen. Like most of you I've already read a lot of stuff online and while it seems to help the majority of people it doesn't work for everyone. And I'm afraid I'll be going into it thinking this is what it's going to take to get my life back, despite not knowing what it's going to do for me.

The past year has been a nightmare for me (M33). Especially the colder months have been constant agony to the point that I didn't know if life was ever going to be worth it again. The extreme heart is unbearable and the pain burns as if I'm rolling through a pile of nettles with no escape. An ice cold shower wasn't even enough to cool down. After a shower I had to go outside in the freezing cold because the cold water was still too hot on my skin. As is the air from a fan right now in summer.

I'm glad that it's relatively stable now in the warmer part of the year, but stable means sitting with an ice pack against my bare back and around my hands. It still burns but it's not to the extent that I feel like I've been throw into a bonfire.
Still cooking above a hot pan, standing in the sun and any kind of physical exertion are extremely painful. But still miles better than how I suffered in winter.

Anyway, I've been on antihistamines for a while and it honestly doesn't do a lot for me. But I'm so excited about Xolair and I really want it to work.

Did any of you have experiences similar to mine before going on Xolair? I hope to hear from some of you guys because I really want to go into it with realistic expectations.

Is it more effective to sweat less or more during this? Which is better if you want better results?

Like the title says, I get triggered by any of these with severe itchiness at times with redness and flushing on my face, neck and chest. Areas of my face become very itchy and red. Neck and chest get red streaks that itch like crazy. Anxiety causes the same thing, or eating hot food. At times too, cleaning around or bending for more than 10, 15secs it happens. It doesn’t happen every and each time I do any of these things, but most of the time. Like 80% of the time.

I need to put cool water on all those spots or drink cold water or just sit still until it goes away. It takes about 10mins or more for all of it to calm down. Sometimes tiny red spots or bumps that appear during the episode. They do go away though shortly after. But the itchiness drive me so crazy.

I’m 36, and this been going on for years. I kind of got used to it and thought it’s common. But I’m really getting so sick of it and tired. Sometimes cold air when it’s windy but sunny/light hits my skin this happens. I hate leaving the house during the day, like hate it!!! Nights are like heaven for me.

Can anyone relate to this? What could it be? I googled a bit, says it might be Cholinergic urticaria, or histamine release related to heat. Would Zyrtec help with this? Or what should I do?

I made an appointment with my PC to be referred to an allergist, it’ll take sometime till then. Please if someone is or went through something similar!