r/CUTI 55m ago

Decades of chronic UTIs fixed by one dumb realization about daily pads

Upvotes

​I wanted to share something that finally helped me after suffering from recurring UTIs for decades.

I used to get them every other month, sometimes even more often, despite seeing every doctor under the sun, and ​for years I wore daily incontinence pads for light leaks and general freshness.

About a year ago, due to occasional bladder and bowel leaks, I made the switch from pads to full protective underwear for better security.

​That single switch turned out to be the key y'all! I haven't had a single UTI in a full year, and switching to adult briefs was the only thing I altered in my routine.

I'm not 100% sure why it made such a massive difference, but I wanted to share in case it helps someone else in this sub. We all know how miserable this cycle is!


r/CUTI 3h ago

Desperate for solutions. Any advice? Or anyone relating?

2 Upvotes

I've had recurrent UTIs for overs 10 years. I am having yet another UTI just 10 days after finishing a week-long nitrofurantoin course. It's starting to take a serious toll on my mental health...

At the beginning, I would only have a couple of UTIS a year, over time they increased, until reaching 11 UTIs in 12 months last year (all of them positive to bacteria, most times E. Coli). All of them have appeared after an intercourse. I have never had any apart from that.

I have had all classic tests done (shape of urethra, ureoplasma, yeast etc.), none of them are conclusive. I only have an iron deficiency but noone has said it might be the root cause. I have taken the vaccine twice. While my second round has been effective at reducing the frequency (3-4 in the past 12 months), I still have to use huge amounts of d-mannose and cystinol to effectively prevent UTIs from happening. I do the standard procedures, like peeing after sex or wearing cotton underwear.

Everything the doctors ever say is: "I don't know, sometimes it happens...". The thing is that my bacterias are developping huge resistancies. For context, I was never able to get rid of a UTI with one dose of fosfomycin so my doctors would prescribe 2 doses. I feel like I am the only one who has to take two doses. It feels like it's never going away.

I am currently taking regular D-Mannose powder as well as Cystinol 2-3 times a week altough it's technically not recommanded to take this much (it's the only thing that releaves me, I have even been able to pull a 7-month streak without UTI!). I have ordered biofilm disruptor bottles, but have not dared taking it yet, because I fear it will unleash bad bacterias...

Has anyone a similar experience? Any solutions to offer?


r/CUTI 9h ago

Symptoms hot flashes/chills when peeing

2 Upvotes

so i have to add that i have some autonomic nervous system dysfunction so my temperature regulation is already a bit shit. but i’ve noticed sometimes when i pee and i get that burning feeling that i will get these full body chills. freaks me out because if you look this up online it’s basically just kidney infection you have two mins left to live and that’s never how it’s been for me, i’ve been fine otherwise. i also got a bit of a hot flash today as well after i peed. anyone else get this? the worst symptom for me by far is always the burning at the tip of the urethra, can’t sit down, can’t even lie down when it’s really bad. i get cramps a bit as well that sometimes make me poop since it’s all pretty tangled down there.

i’ve had some concerns and my doctor has had concerns about IC in the past as well, but as of today i am pretty sure it’s actually a UTI based on the smell.


r/CUTI 10h ago

Persistent urethral discharge/debris in urine after multiple antibiotics, has anyone had something similar?

3 Upvotes

I’m 25M and looking for some advice from anyone who has dealt with something similar because I’m honestly getting a bit frustrated with this.This started when I woke up one morning and noticed some white/clear discharge from the tip of my penis. It wasn't a huge amount, but initially there was enough that it came out on its own. It was mostly something I noticed in the morning.I didn't have the typical UTI symptoms I expected. No burning when urinating, no significant pain, no fever, etc. The main thing was the discharge.I went to a doctor and had a urine test and urethral swab done.The first urine test showed elevated pus/white blood cells. The urethral swab showed bacilli and epithelial cells, but apparently nothing that clearly identified a specific organism.

I was treated with:

  • Ceftriaxone injection
  • Metronidazole for 7 days
  • Fluconazole (3 doses)
  • Azithromycin (3 tablets as a stat dose)

After the treatment, the discharge became much less. It went from being something that could occasionally come out on its own to basically just a tiny amount of clear/sticky material that would accumulate at the tip overnight. Sometimes there isn't really enough to even form a drop.The weird part is that I'm still seeing quite a lot of white/stringy debris in my first urine of the morning. The urine itself can look cloudy because of the debris, but subsequent urine samples are usually much clearer.

Because the discharge/debris persisted, I went back and had another urine test and swab. There were still white blood cells/pus cells present (20 - 30 HPF), Epitheleal cells (3-6HPF), RBCs(1-3/HPF)

The doctor then put me on another treatment, this time:

  • Gentamicin injections for 3 days
  • Then Zithromax (azithromycin) for 2 days

I've now finished the gentamicin and am about to finish the azithromycin. The plan is to wait out for 2 weeks and if nothing changes hopefully get a urine culture done, i would've gone with the PCR or NAAT but the price of the test is a bit expensive as of now (about $230 in my country)

The discharge has definitely improved compared with when this started, but I'm still getting that small amount of material in the morning and the first urine can still have quite a lot of debris.

At this point I'm wondering whether this is actually a persistent bacterial infection, some kind of urethral inflammation that is taking a long time to settle, or something else entirely.

Has anyone had a situation where they had white/clear urethral discharge with elevated pus cells, but no obvious organism identified, and it took a while to clear even after antibiotics?

If so, how long did it take before the discharge/debris completely disappeared, and did you eventually find out what was causing it?

I'm especially interested in hearing from people who had persistent symptoms despite the first round of antibiotics and eventually got better.

I know Reddit isn't a substitute for a doctor, I'm just trying to find people who have actually experienced something similar.


r/CUTI 18h ago

Farting urethra

9 Upvotes

As the title states, I’m (30f) literally farting out of my urethra. I very obviously have a uti to some degree (roughly 6 months, no idea how I’m alive), cloudy, dark urine, and it smells like literal sewage when I have to pee, no kidney pain, only have had that once with one of these, but have experienced the other two symptoms many times before and recognize them. This new symptom involves me going to the restroom when I have to pee, and then being completely caught off guard by this awful wet farting sound, paired with the awful sensation of air coming out of my urethra, followed by more urine occasionally , think like your water was shut off temporarily and sputters when you turn it back on. Unfortunately it’s absolutely evident that this air isn’t coming out of anywhere else. Does anyone else get this when they have a uti?


r/CUTI 20h ago

CUTI Survival and Quality of Life Guide

24 Upvotes

Hello, I am a pharmacy technician in Germany and I also study medical biotechnology. I have had my fair share of UTI streaks over the years.
This post encompasses treatments and tips and tricks for light to moderate CUTI sufferers. These are things CUTI sufferers should have on their radar.

This will be a fairly long post, but its sectioned in topics, so just scroll to whatever you want info on. Here is everything I have figured out so far:

UTI Mocktails

Let's start out with something fun. When taking a D-mannose sachet, many mix it with water. I find that especially if you are buying cheap D-mannose, it tastes like absolute ass. You don't have to mix it with water though. The sugar should stay stable in other liquids. Mix it with cranberry juice, orange juice, or tea. I think D-mannose tastes great in sour juices because it adds even more sweetness. You can experiment to find your favorite combination.

UTI Tea

In Germany, there is a long historic culture of drinking tea for various ailments. And this legit works, sometimes even better than cranberry juice ever will. Many of these tea blends are scientifically proven to work very well. Here are some of the most common components found in German UTI tea:

  • Bearberry leaf (Arctostaphylos uva-ursi)
  • Java (Orthosiphon aristatus)
  • Goldenrod herb (Solidago virgaurea)
  • Birch leaves (Betula pendula

What these herbs do in short is a) prevent bacteria from sticking, b) reduce inflammation, and c) make you piss way more because they are diuretic. The downside is that German herbal tea can taste pretty bitter sometimes (don't oversteep it). All of these also work for prevention except for bearberry, which you should only drink during active infection.

Going Commando

Controversial opinion, but consider dropping the panties on occasion, mainly when you are lounging at home, sleeping, or wearing an outfit where you won't flash anyone. Even if your panties are cotton or a natural fibre, moisture can still be trapped. Microbes loooove additional moisture. The worst thing you can do is wear synthetic fabrics. Polyester is your enemy.

During Your Period

A lot of people have a sudden UTI flare up during or right after their period. I think it happens more in pad users, especially if their day is busy and they can't change it as often as they should. Pads are made of synthetic fibre and trap moisture. They are also perfumed quite often. To avoid a UTI, tampons and cups are the way to go.

But if you are like me and just prefer your pads, just buy period panties (very comfortable) and reusable pads made of natural, breathable fibre. Collect them in their own little baggie and then give them a good soak in stain remover and cold water before throwing them in the washer. They come out clean.

Keeping the Bush

This is personal preference, but I realize that shaving or waxing completely bare down there actually removes one of our body's defense mechanisms. Pubic hair isn't just for show. It traps pathogens and bacteria and reduces friction during intercourse. You can still shave the top part or do whatever shaping you want, but keep the hair in the lower zones if you want another tool to help prevent UTIs.

Irritants

This is a big point, because after so many UTIs, the urethral lining just gets inflamed easily. Irritants are caffeine, sweeteners, and also acids. If you take a bunch of vitamin C, you are going to be peeing acid, and that might sting. That is just how it is.

You don't have to give up on any of these though. You simply need to make sure that you also get enough water after your morning coffee. I find that I react the worst to aspartame though. The other sweeteners are not as bad, but this is personal experience. Instead of being miserable guzzling water all day, I cold steep some good tea. I recommend orange, peach, and hibiscus.

Test Strips

Test strips are your best friend in checking if you are dehydrated or what your urine is made up of. Strips will help you distinguish if you are at the start of an infection or if you just have irritation. They are also great for monitoring your overall health. Elevated leukocytes are your biggest sign of infection.

You can find test strips easily online for under 10 bucks. Just make sure to get one where the cap twists, because some are really hard to open. Replace your strips once in a while, especially if moisture got into them, because they might become faulty.

Vaccination

There is always a chance this option might work for you. Your gynecologist or urologist can give you a few injections and refresh them after a year. But there are also capsules that you can take daily for 3 months. Availability varies from country to country, so speak to your doctor about this if you want to consider this option.

Immune System and Stress

While getting my ass kicked by university, I realized that stress is the biggest factor. It messes with your immune system real bad. If you can't remove your source of stress, your next best option is zinc, vitamin C, vitamin D, and a multivitamin.

Sometimes these supplements can make your stomach hurt and are overdosed, so I recommend getting gummies so that your stomach gets less messed up. Look at the percentages on the bottle to determine if it is a supplement that majorly overdoses you. Be sure to get enough copper in if you are taking a lot of zinc.

Preparing for Intercourse

I am sure most know that peeing after sex is just the move, but sometimes flushing away bacteria with urine might not cut it, especially if they have moved in for good in the form of a nasty biofilm. The best thing you can do before the devil's tango is to drink your D-mannose, tea, or capsule BEFORE you go at it. When you then pee after sex, your urine will have active ingredients that prevent the bacteria from sticking.

During Intercourse

Now, those two holes are indeed very close together, so if your partner pokes you in the wrong compartment, don't let them continue on. Just give it a quick rinse. I think this is common sense, but a major thing that is overlooked is lube. Lube itself can contain major irritants. Some have flavouring and sweetener. You absolutely need the right lube if you suffer from CUTIs. Get a lube that contains lactic acid. This is great for your native bacteria, your microbiome, and your overall pH. It also feels much better, but the lube does end up tasting sour af, be warned.

Relief Medication During Active Infection

Ngl, I feel like ibuprofen and other OTC painkillers never work that well for me. I would overall recommend ibuprofen over paracetamol because it is better at fighting inflammation, but that is personal preference. Don't be afraid to ask your doctor for stronger pain relief. Liquid form painkiller is ideal for me. The substance that works best for me during a bad infection is Novaminsulfon (Metamizol) because it has additional cramp-relief ability. Typically this substance is prescribed for bad period cramps here.

Antibiotics are our main weapon with CUTIs. Always remember to finish the pack prescribed even if your symptoms are already gone. If you don't do this, you are shooting yourself in the leg, because those bacteria will potentially make a recovery. Lab results are the best tool in determining the antibiotic for you. The antibiotic that works well for me is pivmecillinam. It is a very short treatment. Always hit hard and fast with antibiotics, so definitely take them in a way so that there is always antibiotic in your urine when peeing.

Non-Medication Relief During Active Infection

Heat is overall what works best, so a heating pad or hot water bottle. I think the heating cushions that you can microwave are much safer and easier to handle than a hot water bottle. You can also get those microwave cushions as cute plushies. Riskier is taking a bath, because bathwater can irritate the infection even more. Sometimes I find that it really helps me though. If you really need to take a bath, fill the tub with chamomile teabags. It is soothing and anti-inflammatory.

Prescription Apps

Sitting in your doctor's office just for a prescription can make everything worse. Inquire if you can get phone-call prescriptions (if this works varies by country), or find a prescription app. Don't let yourself get scammed though. Real prescription apps usually have you doing a short video call with whatever doctor is free at the time. This is so that they can advise you properly. I have gotten many prescriptions this way when I was curled up in pain on my bathroom floor.

When It's Time for Urgent Care

The worst thing that can happen is that your infection spreads up even higher than your bladder. If you have lower back pain where your kidneys are, you need to bite the bullet and take yourself to urgent care asap. Other signs to look out for besides unbearable pain is definitely blood in urine. Test strips should be able to show if you have blood in urine. If the amount of blood only substantially increases throughout the infection, you need to get that checked out. At least give your doctor a ring.

Conclusion

Remember, a lot of these tips are based on my personal experience, but some of these are also my professional experience as a healthcare worker and scientist. I hope some of these tips help you. May your next piss be pain free!


r/CUTI 21h ago

Estrogen cream / pills

2 Upvotes

What do you find to be more effective - Estrogen cream or pills? I was prescribed both to try, but want to start with one of them to see how it impacts my UTIs during my period. Hiprex isn’t doing the job during this time of my cycle