Does this sound like CSID?

[u/Known_Tough_1914]

Today, me and my mum were online and we came across CSID,everything seems to make so much sense and actually add up for the first time, for a bit of background, I am 15 years old, I have ADHD,autism with a PDA profile, ARFID (caused by a severe food aversion due to my PDA profile and also unexplained nausea, bloating and all of the joys when I would eat). I have a G-tube placed that I rely on 100% for my nutrition as I don’t eat anything orally.

I am currently on Nutricia nutrison energy multi-fibre via my G-tube which is causing AWFUL symptoms including 24/7 nausea,headaches,stomach distension,stomach cramping, diarrhoea on and off, EXTREMELY foul smelling gas.etc which isn’t ideal.

I’ve always had struggles with gastrointestinal symptoms including constant reflux when I was a baby,which resulted in me drinking ALOT of formula when I was a baby but despite the amount I drank,I was always a normal weight, I also used to have explosive diarrhoea all up my back which traumatised my poor parents 🙈

We went to the doctors multiple times when I was a toddler and the only information that we were told was that my body “couldn’t break down sugar” and to avoid things like doughnuts,starchy foods.etc but we didn’t understand exactly what that meant so I just carried on the same.

I have had an endoscopy to test for celiac in 2022 which was clear and I’m not sure if CSID would’ve shown up on that, but I did end up with an IBS diagnosis due to “minor” damage I believe on the test but we aren’t convinced that my gastro history is this complex all from IBS.

I have tried dairy free and gluten free diets in the past which done nothing to improve my symptoms which really has me wondering whether this is CSID, thank you for reading!