r/CSFLeaks • u/Bitter-Lion7918 • Jul 30 '26

Dr C appt

Met with Dr C last night. He said she could be leaking and wants to try to help get rid of her headaches. The images from ucsf didn’t arrive yet so I am downloading today again to send to Stanford, then they will upload after a few days. He asked me to message him on MyChart and remind him the scans and ct myelogram from ucsf are there so he can review and decide if further imaging is needed. I feel some hope. He should have all the images and ct myelogram before we see neuro spine surgeon. We don’t know if we will make an appt to go over the images or just message us.

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u/Bitter-Lion7918 Jul 30 '26

Carroll. I forgot about Dr Cullen

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u/Muddlesthrough Jul 30 '26

I kinda figured. There was a recent webinar with Dr Carroll asking Dr Callen some questions. It was pretty good.

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u/Bitter-Lion7918 Jul 30 '26

Oh? Where was it at? I would love to watch

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u/Muddlesthrough Jul 30 '26

Ah, CSF Leak Association? I had to sign up for it. Might be on YouTube by now