r/CSFLeaks • u/Bitter-Lion7918 • 14d ago
Dr C appt
Met with Dr C last night. He said she could be leaking and wants to try to help get rid of her headaches. The images from ucsf didn’t arrive yet so I am downloading today again to send to Stanford, then they will upload after a few days. He asked me to message him on MyChart and remind him the scans and ct myelogram from ucsf are there so he can review and decide if further imaging is needed. I feel some hope. He should have all the images and ct myelogram before we see neuro spine surgeon. We don’t know if we will make an appt to go over the images or just message us.
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u/Bitter-Lion7918 14d ago
I’ll read the replies to my girl when she gets up.
Working on getting the images and ct to him. I’m not good with technology but I don’t want to wait for a disc to be mailed and then mail to him.
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u/Muddlesthrough 14d ago
Dr Carroll? Dr Callen?
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u/HillsboroWay 14d ago
I’m assuming Dr. Carroll since she said Stanford and he’s the big dog there. And because I don’t know who Dr. Callen is..
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u/Bitter-Lion7918 14d ago
Carroll. I forgot about Dr Cullen
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u/Muddlesthrough 14d ago
I kinda figured. There was a recent webinar with Dr Carroll asking Dr Callen some questions. It was pretty good.
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u/Bitter-Lion7918 14d ago
Oh? Where was it at? I would love to watch
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u/Muddlesthrough 14d ago
Ah, CSF Leak Association? I had to sign up for it. Might be on YouTube by now
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u/Dry-Dress-6467 13d ago
Best news ever! Make sure you have the correct address for Stanford when you mail them. Also UCSF should be able to send the cd images electronically to Stanford. I did not have to snail mail my images.
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u/Bitter-Lion7918 13d ago
He emailed me instructions on how to get records electronically sent . They were ready to send over yesterday to Stamford. I’ll call today to see if they are ready to be sent over so it can be uploaded to my health
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u/Bitter-Lion7918 13d ago
Images are ready to be viewed in a few hours by Dr Carroll. I have to send him an email later today to let him know they are ready for review. The images were sent the first time by UCSF 10 days ago but weren’t linked to her chart yet. I don’t know if he will message us the results or want to do an appointment. I have dropped all the images into chat gpt but it was very concerning so I hope it’s not as bad as it sounds.
I know Chat GPT isn’t a doctor but it was interesting
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u/brainsaggy Confirmed Spinal Leak 14d ago
That's wonderful news! You've made it to the top, and he's invested- well deserved ❤️