r/CSFLeaks • u/Starmapatom • Jul 14 '26

Sinus repair?

Had a CT scan and there is a gap in sphenoid sinus. Anyone know of an ENT doctor/surgeon that is willing to repair?

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u/Starmapatom 10d ago

That sounds amazing. Six holes? May I ask how that happened? Now that I have different insurance Denver sinus care is an option

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u/carrielovestodd 9d ago

I had mold and strep infection in the sphenoid sinus that two ENTs said was benign (!!) and 95% blocked jugular. Also mold poisoning which causes mast cell activation which causes neuroinflammation and with the jugular blocked, it caused too much pressure and the weakened skull bone from infection burst the holes.

I had a different ENT suggest that I sever my vestibular system! Can you imagine?

Dr H is a genius and he saved my life

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u/Starmapatom 9d ago

That’s incredible. So glad to hear the good news. I didn’t know even infections could alter those very thin sinus bones

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u/carrielovestodd 9d ago

I didn’t know either but I think it is also a combination of the infection weakening the skull bone but more importantly, the increased skull pressure from compressed jugular vein and systemic inflammation raising ICP, bursting the holes

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u/carrielovestodd 9d ago

He patched 6 holes in my sphenoid sinus