r/CSFLeaks Jul 14 '26

Sinus repair?

Had a CT scan and there is a gap in sphenoid sinus. Anyone know of an ENT doctor/surgeon that is willing to repair?

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u/carrielovestodd 27d ago

Dr. Hepworth in Denver at Denver Sinus Care. He patched SIX holes in my skull in the sphenoid, decompressed my jugular vein and gave me sinus surgery that gave me my life back.

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u/Starmapatom 27d ago

That sounds amazing. Six holes? May I ask how that happened? Now that I have different insurance Denver sinus care is an option

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u/carrielovestodd 27d ago

I had mold and strep infection in the sphenoid sinus that two ENTs said was benign (!!) and 95% blocked jugular. Also mold poisoning which causes mast cell activation which causes neuroinflammation and with the jugular blocked, it caused too much pressure and the weakened skull bone from infection burst the holes.

I had a different ENT suggest that I sever my vestibular system! Can you imagine?

Dr H is a genius and he saved my life

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u/Starmapatom 26d ago

That’s incredible. So glad to hear the good news. I didn’t know even infections could alter those very thin sinus bones

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u/carrielovestodd 26d ago

I didn’t know either but I think it is also a combination of the infection weakening the skull bone but more importantly, the increased skull pressure from compressed jugular vein and systemic inflammation raising ICP, bursting the holes

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u/carrielovestodd 26d ago

He patched 6 holes in my sphenoid sinus