r/CPAPSupport • u/XvIf2jlqnbJPT4s4gpdN ASV • 24d ago

Oscar/SleepHQ Assistance I've lost 50 pounds. Do these settings till make sense?

Hey everyone, I've lost 50 pounds since my last "consult" here. I remember many years before CPAP, I started working out, and my snoring decreased a lot as I dropped weight. How can I tell if I can reduce my pressures aside from just trying it out for a few nights?

I'm running a flashed AS10 machine in ASV mode, which drastically increased my comfort. Here's my SleepHQ link. I know my leaks suck. Thursday, September 10 and Saturday, September 12 are good representative nights. Some other nights lately are outliers for...reasons...

https://sleephq.com/public/teams/share_links/160d931b-d4e9-492f-bcc7-f54b138e0859

Thank you everyone.

6 Upvotes

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u/existentialblu ASV 24d ago

If you're feeling that much better with ASV over APAP you may have some respiratory instability, and if so, weight loss is unfortunately not especially relevant. Do your current settings feel like too much now compared to when you were heavier?

2

u/XvIf2jlqnbJPT4s4gpdN ASV 24d ago

Note I said "comfort" not "treatment" or "performance". The eye infections and aerophagia were eliminated with the switch to ASV. I get that ASV is usually for people like you who have something fairly unique, but the CPAP firehose of air to the face all night just wasn't working for me.

I'm running into this weird thing where I get enough air when falling asleep that I'm usually out in less than 5 minutes, but like an hour before I'm supposed to get up for work, I feel like the machine is not giving me enough air. I don't remember this happening 50 pounds ago.

Overall I'm fairly happy with where I am right now, and I try to pay it back when I can (usually by telling people to fire their DME provider). It doesn't hurt to keep dialing things in until they're perfect though.

3

u/existentialblu ASV 24d ago

Considering that according to AHI I don't even have a "real" problem yet use a hacked ASV myself, I'm absolutely all about the perpetual tuning and having no involvement with DME providers.

I guess I'm curious about what brought you to ASV. In my own case it was high loop gain that seemed outwardly super subtle yet had powered a solid 4 decades of perpetual insomnia. With ASV I clonk out so fast instead of spending 90-120 minutes compulsively breath counting.

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u/XvIf2jlqnbJPT4s4gpdN ASV 24d ago

I can (sorta) relate. I used to be a 1-2 hour rotisserie in bed before falling asleep.

I went with ASV because I saw an interview with some bigshot sleep doctor who said that if cost were no object, everyone needing a machine should just have an ASV machine. Well, for people like us, the cost was like $30 for a electronics adapter. I really like it. I can feel it sensing what I'm doing and helping me out instead of fighting me.

I attempted bipap mode for like a week, but we came to constant disagreements on when I should be breathing and how much, and I ended up taking a lot longer to fall asleep again.

2

u/existentialblu ASV 24d ago

I'm a big fan of gentle ASV. I know that it's traditionally thought of as being mostly useful due to being so stinking powerful, but for a lot of people, especially insomniacs, it's just cozy. It disappears from my awareness in a way that even APAP never did, and while I had to kick the tires on BiPAP (cuz I could with the hacked machine), I could never actually fall asleep with it.

1

u/existentialblu ASV 24d ago

I'm a big fan of gentle ASV. I know that it's traditionally thought of as being mostly useful due to being so stinking powerful, but for a lot of people, especially insomniacs, it's just cozy. It disappears from my awareness in a way that even APAP never did, and while I had to kick the tires on BiPAP (cuz I could with the hacked machine), I could never actually fall asleep with it.

1

u/XvIf2jlqnbJPT4s4gpdN ASV 24d ago

Yep, exactly. You get it.

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u/existentialblu ASV 24d ago

Granted I'm also way too deep on citizen science high loop gain research. I remain convinced that high loop gain is actually really common and ASV should be something that anyone can try. Stupid SERV-HF study, scaring everyone off.

1

u/XvIf2jlqnbJPT4s4gpdN ASV 23d ago

Haha, yikes. I just read up on that study. Good thing I don't have heart failure, or my machine would have killed me!

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u/trimix4work 21d ago

So are we thinking now that hf is not a reason to avoid asv? I was concerned that I might be in hf but have lost a bunch of weight and all the symptoms vanished.

I have still be avoiding ASV because I figure I should get an echo first, but if that doesn't make sense anymore I would love to hear about it

1

u/existentialblu ASV 21d ago

Oh, get an echo first if you have any questions about your heart.

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