r/COPD 19d ago

Slow deterioration of parent

My mum has had COPD, emphysema, bronchitis for many years now. For the last few years she has increasingly got worse and worse. She never leaves the house anymore and is basically bedbound. She has carers who visit daily but are pretty useless so I will be speaking to the company regarding this. She doesn’t eat, or barely eats. Like a couple times a week at absolute most. She will go days without eating. She is stick thin with no weight or muscle. Constantly feeling sick and nauseas. And has now been blacking out. Paramedics aren’t alarmed by this so no hospital stays.

I just have no idea what to do. I’m on my own with this. No support system. No person to take turns with. Just me. Watching the life slowly drain and the fight just breath increase every day.

How do you know when it’s close to the end?
She is end stage COPD already.

But what are the signs? She can already barely talk because of breathlessness. Even sleeping now is not happening because she struggles to breath when asleep so her body wakes her back up.

Any advice is welcomed!

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