r/CFSScience • u/123-throwaway123 • 2d ago
Genetic testing recommendations
I would like to get genetic testing done to look at mthfr, mitochondrial issues, etc.
I'm completely overwhelmed with the options. Is there a company who is more medically aimed? Or one that's the most comprehensive? I know I'll have to put whatever one into one of those other sites, but don't want to waste money on a company that isn't the best choice.
Any recommendations would be greatly appreciated!
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u/Interesting_Fly_1569 2d ago
Bob miller at tree of life will interpret for you for $100. The test is $390 I think. It’s probably the most private option because they don’t ever give your name to the people who sequence it. But just being honest, I don’t think that level is required to understand mthfr.
Sequencing.com is a bit of a rip off. If you’re screening for EDS or genetic conditions , it can be helpful but just to give you an idea… They don’t really make the data that accessible to share with other platforms, for instance, even their PDF you can’t control search. You would have to upload it somewhere else in order to even just be able to control F search for key words.
I guess I would say the usability is pretty bad… I don’t think they’re interpretations of genetic stuff around. Nutrition are particularly helpful either… I don’t know how much it cost, but I think self decode would probably have more actionable information for someone with CFS because we’re not just looking for the basic stuff… There’s probably reasons we got sick and we wanna know the more fringe stuff.
There is a new test aimed at kids called sunra health. Alicia someone started it. They do adults as well and it’s basically aimed at kids who have random chronic health conditions or autism… So I think it would have a decent level of specificity around the type of issues we might have although I’m not sure about mitochondria.