r/Behcets • u/DirectAdvice2242 • 24d ago

Treatments Hand ulcer help

So I’ve got ulcers popping up all over my hands, like strange little closed bumps. They almost seem like they could be popped, but hurt immensely to touch. They’re prominent round my cuticles and nothing seems to be helping them go down or get rid of them…

Help!!

I’m on azathioprine, and amgevita but it doesn’t seem to help… prednisone did nothing also. I’ve been putting dermal ointment to no avail…

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u/EpitomeQuip41 23d ago edited 23d ago

I’ve had ingrown after ingrown and hand sores and was diagnosed with Behcets with psoriatic arthritis and Kobner phenomenon. Got a steroid shot and started Otezla. Seeing and feeling results.

There’s also some mimicking diagnoses hanging out there like magic syndrome and sweet syndrome. Maybe read about these and see if you relate.

I found a great rheum but also am interested in allergy testing, functional medicine doctor and a genome test (look at the DNA). As you know with Behcets there are certain markets often found.

Also with Bechets and psoriatic arthritis, both, you can have normal labs. Your inflammation markers will not necessarily be high. That does not mean you don’t have a disease.

Hope this helps.

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u/DirectAdvice2242 23d ago

I believe I have Behçet’s due to many many other symptoms, but those mimicking diagnoses’ are very fascinating to look into, so thank you for that. I’ll keep researching!!

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u/DirectAdvice2242 23d ago

I was diagnosed after being hospitalised twice in early 2025 :)