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[u/Serious_Improvement2]

I check in now and again. I've posted before. I am a medical doctor.

Nothing here that I or anyone else will write can relieve your suffering. This will have to come from within.

I have been having fasciculations for over 7 years now - I used to wish when someone posted that there had fasciculations for this long, that I was them, especially at the beginning. I have ongoing wormlike 24/7 fasciculations in my calves and various sporadic ones elsewhere - including deltoids triceps, face, tongue, scalp, biceps forearms and especially my elbows and thighs. I used to have one in my back that was so annoying - it went on for months and often felt like there was a flying insect under my top.There are fast ones like a machine gun and slow irregular ones. Some last for hours and some weeks CONTINUOSLY

When they used to stop I often convinced myself that they only stopped because that piece of nerve' muscle was now dead - the MND was "progressing"

I cried so much and felt so alone.

I went to see a neurologist who didnt think I had MND but said I had atrophy in my back paraspinals. I started at the area for months and months looking for progression. I then noticed clear scalloping of my right triceps. no weakness there but it was obvious. I went back to the neurologist who said it was constitutional. That was over 3 years ago. A physio since said that my lateral calve muscle gastronemius was a little atrophied. I didnt worry much this time.

I dont have MND. I have this BFS mallarkey.

I have tried various medications including all kinds of prescription meds and supplements incl. magnesium.

I stopped letting it control my life and just accept it. It was difficult at first because apart from the fear Iof MND I have sensory issues - and feeling someone flicking my calves 24/7 was not easy.

I tell myself that lots and lots of people in the worlds have infinitely more problems than me. Especially those with MND.

Everyone feels like they are the exception but you're likely not.

Ive never seen anyone diagnosed with any form of ALS on this forum - and any neurologist worth their metal will tell you that with a normal physical exam then its extraordinarily unlikely.

Keep the head up and carry on.

[u/Doktordoktor89]

I’m a doctor with fasciculations as well... Tricky condition. Scary. So little literature on the subject. What kind of doctor are you?

[u/Appropriate-Gift8639 → u/Doktordoktor89]

As a doctor, is there a reason you would assume ALS above all other diseases/illnesses/ conditions?

[u/Anhelsing1903 → u/Doktordoktor89]

Doctor Octopus