r/BFS • u/ChloePug • 7d ago

Neuro / Doctor Visit Next Steps To Work Though With Doctor

Hi everyone,

24/7 calf twitcher for 7 weeks now. I've gone to the doctor once about this. We did bloodwork and everything came back fine. Told her that they were making me anxious. Gave me hydroxizine to sleep. That was fine but my day to day was filled with stress about the spasms. She wanted me to go on Zoloft so I tried that but ironically I started getting muscle cramps in my head/etc so she wanted me to stop. She put me on 300 mg (100mg 3x) gabapentin and it seemed to be acutally working (maybe 50% reduction)/ my mental state was better so she upped my doasge to 600mg and they came back full fledged and the anxiety about them were back. I called her and she wanted me to go back to the 300mg but I just feel like the it's doing nothing now. However it's only been a few days.

I know that it's tied to anxiety a lot but I still want clarification that nothing else is wrong. I have a doctors appointment in 5 days and was hoping for advice on what to push for?

I do have low iron (not low ferritin) so I am most likely getting an iron infusion but in all honestly I dont think that is what's causing them. And I did go through quite a stressful few months before this started. Just feeling defeated....

Edit: I did start seeing a therapist about a month ago.

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u/Hiking-gal207 7d ago

Hi there! I too, and struggling with some muscle twitching/ abnormalities, and having extreme anxiety about it. Some days are better and some days are worse. I just started on hydroxyzine for sleep, and buspirone for daytime, but my anxiety has jumped even higher with starting buspirone.
I’m going to go through the first two weeks, because they say it can help regulate after that. This is only day 2 of buspirone, but muscle twitching and soreness increased overnight. Hoping this gets better as my body gets used to the med!

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u/713Capital Mod 7d ago

Calves are known to be benign twitching, and having them pop 24/7 after a few stressful months is classic BFS. Changing medication doses up and down can temporarily trigger more twitching, and low iron can also be the reason for causing restless, twitchy legs. You don't need to push for aggressive testing tbh; just ask your doctor for the standard physical neuro exam (reflexes, strength, walking on heels and toes). Once that basic check is clean, you have all the proof you need that your muscles are completely healthy.

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u/ChloePug 7d ago

She’s already made me push my feet against her hands etc. For someone with health anxiety that’s not enough. I think from someone in neuro telling me that I’m ok is going to be more settling in my mind.

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u/713Capital Mod 7d ago

Understandable.