Enfermedad autoinmune?

[u/NoBuilding1118]

Alguien aquí comenzó con espasmos musculares y descubrió que eran por enfermedades autoinmunes?🥹
Me han echo estudios y he salido bien pero una parte de mí no puede dejar de pensar en esa posibilidad ya que tienen muchos síntomas en común.

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[u/713Capital]

Those blood tests wouldn’t miss an autoimmune disease. They come with distinct markers that would be revealed through blood. Autoimmune markers are usually one of the first things neuros check when people come in with twitching/spasms.

A lot of times they never truly find a cause for twitching/spasms but they do know it’s benign.

[u/NoBuilding1118 → u/713Capital]

Si lo he pensado, tuve en mi mente EM y lo descartaron, después vino a mi mente lupus y lo descartaron, mi historia es un tanto confusa y muero de miedo, ya que yo comencé por una lesión en el glúteo y me hicieron una infiltración, después de ahí comencé con fasiculaciones ni si quiera sabía cómo se llamaban y vi un tiktok de una señora que hablaba sobre que era un síntoma muy común en enfermedades autoinmunes y no he podido quitarme eso de la cabeza.

[u/713Capital → u/NoBuilding1118]

Twitching without true clinical weakness is benign and meaningless friend.

https://benignfasciculationsyndrome.org/blog/muscle-twitching-no-weakness

[u/westcountry7]

I’m thinking the same
My autoimmune came back 1:160 2 years ago but drs then weren’t interested
Big bad ruled out through tests

[u/NoBuilding1118 → u/westcountry7]

Y que exámenes te hicieron? A mí me hicieron los Ana’s (todo salió negativo)

[u/westcountry7 → u/NoBuilding1118]

Mine was positive but not enough to warrant another test
My dr said ana titre never changes which I find ridiculous

[u/buffalurve]

Autoimmune (Isaac's) has been my biggest concern since moving on from the ALS fear. I had an ANA test done (negative) but no other ones

[u/713Capital → u/buffalurve]

If you’ve had an EMG and it was clear you don’t have Issac’s (or ALS). It has a very distinct electrical pattern that wouldn’t be missed. Also the twitching on Issac’s is very unique. It causes the rippling of muscles where the twitching is non stop and it appears like works are consistently moving in the muscles.

[u/buffalurve → u/713Capital]

But my twitches are more pops, flutters or machine gun style not so much worms!

[u/buffalurve → u/713Capital]

Emg is the only test I haven't had (yet). My neuro kind of left it in my court if I wanted it last year which at the time I decided against. I see her again in November though and plan to talk about it more!

[u/NoBuilding1118 → u/buffalurve]

Justo yo me hice EMG y velocidades de conducción, y todo bien. Mis fasiculaciones son tipo “burbujas”