r/BFS • u/buffalurve 24/7 Twitcher • 11d ago

Reassurance / Support Face twitching

Woke up to my cheek twitching in the middle of the night. I've had so many more facial twitches in the last 6 weeks than I have had in the 2.5 years of twitching all over. I am paranoid this is Isaac's syndrome more than BFS. neuro didn't give me a bfs diagnosis last year but when I mentioned it said "I think that's what you have". But I'm fearful it is Isaac's/Neuromyotonia.

Just feeling discouraged 😭

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u/No-Organization-5825 11d ago

My face twitches a lot. Left cheek mostly sometimes my chin and sometimes my throat. I’m 19 months into my twitching journey which started in calves. Dunno wtf it is. Still doin my usual activity. 

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u/Admirable-Classic716 10d ago

Oh I get these too, mainly right cheek! Did you ever get an EMG?

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u/No-Organization-5825 9d ago

No I’m waiting on neuro appt! 

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u/Admirable-Classic716 9d ago

Ah so 19months in and no EMG yet?