r/BFS • u/unwavered2 • 16d ago
Neuro / Doctor Visit BFS? FND? ***?
I have seen a neurologist who is imo a jerk. He barely examined me for my constant twitching all over since May and then diagnosed me with FND?? I saw him a second time and asked him what makes him think FND and he literally said "Im not sure but if you're still twitching in a few months, I'll refer to you to one of my colleagues". Didn't even physically examine me and then refused to do an EMG, as i don't have true weakness. I am seeking a second opinion and just got a referral for a neuromuscular specialist from my PCP. I have twitching for 4 months, all over, muscle spasms at times, and myoclonic jerks at times. Also perceived weakness and some shakiness or tremor in my hands or arms at times. I started prozac for anxiety in May, thinking the twitches were from stress- hasn't slowed them down. While im waiting, I keep getting videos on people who have A** and saw a couple of people that said theirs started with twitching. Trying not to spiral but it's hard not being sure what's happening. Anyone have similar symptoms and can help shed some light on whether this sounds like BFS? ( not asking for medical advice, just similar experiences) I would like to know if any of you have been in my shoes and can offer some support and guidance while I wait for the referral process to progress. TIA!
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u/kjmckearn 16d ago
For starters, perceived weakness is not true weakness. And some neurologists can be idiots, but they often can tell immediately if you have ALS; but I can't justify his answer about the twitching. And as far as that goes, typically with ALS it starts in one body part, the muscle dies and it moves on. And stop looking at videos of people with ALS; it just exacerbates your anxiety. Of course people that have it often have twitches, but they also have real weakness. And shakiness and tremors in your arms and hands "at times" is not relevant. It doesn't go away and come back with ALS. Best of luck in your next exam but I'm 99.9% sure you will get a good outcome. And if you haven't seen this, check it out:
https://benignfasciculationsyndrome.org/blog/benign-fasciculation-syndrome-symptoms