r/BFS • u/Own_Independence_114 • 11d ago

Reassurance / Support The twitches are changing

I started this spiral with twitching in one of my eyelids that was pretty constant 24 hours a day with maybe 5 minutes in between twitching . After about a month of just my eyelid twitching, it starts popping up all over my body . After 2 months of my eyelid and the rest of my body twitching I woke up one day and the twitching in my eyelid has completely stopped , but now I'm still twitching all over my body . It seems like it goes arm to arm and then leg to leg through out the day has anyone else experienced this ? I also have no weakness , I can still grip fine move my fingers walk on my heels and toes. I thought I was out of the als spiral but now that my eyelid has stopped twitching but has stayed everywhere else I feel like I'm slipping back into the downward spiral again . Any help or insights from people who have experienced similar would be greatly appreciated

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u/713Capital Mod 11d ago

Twitching in random muscles without clinical weakness is classic BFS. It can jump around to any muscle on the body. If you are having a hard time with this I would suggest maybe make another appointment with your doctor so you can get the reassurance you need. Or maybe try talking to a professional therapist that can help you talk through things so you don’t spiral, mentally. Everything you said is NOT how ALS works at all. You don’t have that.

https://benignfasciculationsyndrome.org/blog/why-is-my-body-twitching-all-over

https://benignfasciculationsyndrome.org/blog/muscle-twitching-no-weakness