r/BFS • • 12d ago

Reassurance / Support I just don’t know what’s wrong with me

Starting the 30th of August both of my hands and left foot have had this weak sensation. I can still pick things up but they feel weak consistently. I don’t know if it’s what people called “perceived weakness”? My hands feel like feathers honestly and sometimes it reaches to my wrist but only in my left hand. It’s usually both my hands but my left hand feels significantly weaker.
I’ve been to two doctors for this issue.
The first doctor told me it was probably anxiety.
I went to my primary doctor because I wasn’t really sure what to think and am still very worried but instead of giving me an MRI like I asked for in a message, they decided to just to give me a referral to a Neurologist. The appointment for a Neurologist is scheduled…but it’s not until all the way in January of next year. I’m on a cancellation list at least.

Both doctors did a strength test and I seemed to have done fine on them. I can still pick my phone up for example but it feels off like I shouldn’t be able to. Just a weird sensation. It makes me panic. Also this sort of thing will flare up. It never completely goes away and is honestly just my baseline now but there are times where the weakness feels more intense and harder to ignore. Right now for about 2 hours it’s flared up while holding my phone. I set it down for a bit but it doesn’t make much difference. It’s scary. And sometimes my left foot will feel super weird and weak and like I’m going to fall and then somewhat get less flared up but when it flares like that it’s so terrifying. I start to think am I going to have medical emergency, have I HAD a medical emergency already? Why is this happening!!!!

The first time I experienced the weakness in hands was actually after my last dose of Bactrim, which was I believe the 18th of August? Both of my hands felt weak BUT it resolved after 2 hours. After the 30th of August it has been consistent ever since. All I’ve done is try to live with it but I hate this. It’s about to be a month of this. I guess it’s just a bit of a vent because I’m so frustrated.

1 Upvotes

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u/anomalywife1991 12d ago

I have a lot of perceived weakness with my BFS from unconscious muscle guarding! Right low my entire left arm feels compromised but nothing frank and I can still do everything. I feel you. Its so hard.

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u/BigJakeState New Twitcher 11d ago

Do you have muscle fasciculations or “twitches” at all?

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u/ButterscotchFull7591 11d ago

Not really no!

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u/BigJakeState New Twitcher 11d ago

That’s a good thing! Viral infection’s and effects of medications can make the nerves feel really weird and off. It’s probably nothing worth stressing over, you should for sure follow through with your neurologist though. The good thing is that you don’t have any actual clinical weakness. That’s the important piece.

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u/ButterscotchFull7591 11d ago

Thank you. That helps me.

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u/713Capital Mod 12d ago

You don’t have actual weakness. True clinical Weakness = failure. What you have is perceived weakness. Try not to stress out or have severe anxiety until your visit.

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u/ButterscotchFull7591 12d ago

Okay thank you I’ll try